I was speaking to a Neurologist friend of a friend and he told me that classic TN pain attacks shouldn't take place when you're asleep/wake you up from sleep. Is this true?
I have no idea about classic TN, all I know is that I regularly wake up in a lot of pain. Usually it's because I have rolled onto my side and triggered it.
My TN pain does not wake me from sleep. Actually I cannot wait to sleep because I know that is when the pain will go away. However, as soon as I open my eyes from sleep I feel the nerve, in the dominant area where I have trouble with it, activate immediately.
I have read in a few places that ATN can wake you up from sleep whereas the classic TN doesn't.
I have seen the issue break both ways: some patients either TN or ATN sleep through, and some are awakened by breakthrough pain. This may be one reason why many neurologists boost the last dose before bedtime, to settle the nerve down.
Regards, Red
TN patients are like snowflakes - we are all magical and tiny - but our experiences of floating around are very individual
If this was facebook I'd push "like" :)
Kc Dancer Kc said:
TN patients are like snowflakes - we are all magical and tiny - but our experiences of floating around are very individual
Nicely said!
Kc Dancer Kc said:
TN patients are like snowflakes - we are all magical and tiny - but our experiences of floating around are very individual
That is exactly what I was thinking!
Porcelina said:
If this was facebook I'd push "like" :)
Kc Dancer Kc said:TN patients are like snowflakes - we are all magical and tiny - but our experiences of floating around are very individual
I can usually go to sleep without problem; but then 'when' I roll over on my left side and my face touches the pillow; it wakes me up every time! My husband said before I was put on Trileptal and my body adjusted to it, that I used to moan alot in my sleep...now that is better; but I do still wake up when I roll over. It takes a few minutes to fall back to sleep, but is usually not a problem. Have you looked at your pillow? Does it support your neck / head? That was one of my first questions when I found this site and really didn't get alot of feedback; it is subjective on what your preference is. Hope this helps! :D
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Never thought of that. Good point Red!
I take the Amitriptyline at nighttime. But I don't have pain at night. Still I sleep like a baby now!!!
Richard A. "Red" Lawhern said:
I have seen the issue break both ways: some patients either TN or ATN sleep through, and some are awakened by breakthrough pain. This may be one reason why many neurologists boost the last dose before bedtime, to settle the nerve down.
Regards, Red
Cris,I just pretty much sleep in the recliner now. It is just more comfortable, because of what you said. Plus now with the amitriptyline I sleep pretty good. I don't like not sleeping in the bed, but I have the recline now in the bedroom so it's not so bad. I miss my pillow. :(
cris said:
I can usually go to sleep without problem; but then 'when' I roll over on my left side and my face touches the pillow; it wakes me up every time! My husband said before I was put on Trileptal and my body adjusted to it, that I used to moan alot in my sleep...now that is better; but I do still wake up when I roll over. It takes a few minutes to fall back to sleep, but is usually not a problem. Have you looked at your pillow? Does it support your neck / head? That was one of my first questions when I found this site and really didn't get alot of feedback; it is subjective on what your preference is. Hope this helps! :D
Same here, I can even roll over and sleep on that side of my face and it doesn' trigger it. I can't fall asleep on that side though. My first attack this flareup, I was laying down going to sleep when the blanket touched my face and the rest is history.
Coqi said:
My TN pain does not wake me from sleep. Actually I cannot wait to sleep because I know that is when the pain will go away. However, as soon as I open my eyes from sleep I feel the nerve, in the dominant area where I have trouble with it, activate immediately.
thanks everybody for your responses..I'm glad to know my mother's a classic case of TN..nothing abnormal..thanks again.