Hospital started meds and sent me to a ENT today felt like a complete waste of time. Half days of work for the doctor to refer me to another doctor. So it’s been 5 in a half months going back and fourth I’m finally at my ends with Oakwood systems I made an appointment with a Nero who specialize’s in Nerve and muscle disease. I need answers I feel horrible I’m engaged and I can’t even think about planning wedding. Migraine and nausea is constant but the ear pain comes and goes
grrr sorry ur in the process of being passed around I too was passed around a lot the ent I went to was def useless the sad thing is after me having tn2 for a year and a half when I need my meds I call the doctor and say "Hi this is going to sound crazy but I have a rare disease I know whats wrong with me and what medication I need " and after having a ct scan and 2 mri's Theres really nothing else they can do except surgery. reading everyones posts here helped steer me to what med was going to help me the best. I had bad headaches that wud last all day long in the beginning I mean it was nonstop horrible I tried 2 anti sez meds which seemed to have adverse reaction ...now I am on nortriptyline 75 mg a day which has helped a lot with my pain! Feel free to write me anytime