I am 26 years old and am pretty confident I have bilater ATN that started after a small dose of prednisone over a year ago. I have been to a couple neuro's and even the Mayfield clinic in Cincinnati, OH. None of which even recognize ATN or a TYPE 2. Right now my general practitioner is treating me through meds. I can't get any answers and the only thing that has helped me so far is Cymbalta which only helps for a short period of time (a month or so) and now I've maxed it out. I also take Amitryptiline which I've only been on for 5 weeks so we will see if it starts to kick in. I have gotten no answers and I get so hopeless. I need to find a Dr. in Ohio that deals with ATN. Anyone know of any?? Thanks!
Dr. Andaluz performed both of my MVD’s…but I’m a veteran and I see him through the VA hospital. Very understanding. The only other that I know of would be Dr. Tea who taught Dr. Andaluz.
I have been seeing Dr Larry Dashefsky MD in Mayfield Heights. He is associated with the Clevelland Clinic and has been very helpfull so far. 6803 Mayfield RD. Cleveland, OH 44124 Phone-440-■■■■■■■■.
Dr Tew is retiring. He is with UC in Cincinnati. I am being treated by a doctor at UC but he is like most of the doctors. They keep changing the medicine. It works for a while but it doesn't last. They don't know how to treat it so they really don't want to deal with it. After 4 years and many attempts of different methods I have just about given up. I have spent thousands of dollars trying to find an answer and nothing works.
I just take it one day at a time but I am getting ready to quit work because I cant deal with it anymore.
Dr. Tew did my MVD several years ago, the pain is not nearly as bad as what it was, however it did not go away. I like Dr. Tew very much and I do trust his him and his knowledge of this horrible disorder. My gp is treating me now through meds.
My neurosurgeon is Dr. Jonathan Miller at University Hospitals in Cleveland, Ohio. I would highly recommend him. He did my MVD and 2 radiofrequency procedures. He is very understanding and knowledgable. Hope this helps. Laureen
Hi, there my Neurologist is Dr.Anthony at Riverhills Neuroscience. He is a wonderful doctor who is compassionate and really listens to my needs. He is my prescribing doctor. He referred me to Dr. Tew at Mydield 2 yrs ago and he told me I had to try every med first and if that didn’t work I was to return to him in a year. I am seeing his colleague Dr. Ellen Air today. Try Riverhills. It’s a great practice. Good luck!!!
cleveland clinic would be your best bet. i would of gone there after researching best place to go but i choose northwestern memorial hospital in chicago since i have family there. these large teaching hospitals have treatments my drs weren't aware of. i have been dealing with atypcial and my dr. at northwestern was one who diagx me with some weird form of atypical.
blessings and hope you find help soon.
if you would like my dr. info let me but he is in chicago. excellent dr for atypcial.
I have had brain surgery , acoustic neuroma, Doctors feel that my trigeminal neuralgia was triggered by the surgery, but I went for 20 years without any symtoms. When I started having the pain my family doctor had no idea how to treat me, he tried Neuroton and about four others which I had bad side effects from all. Finally his associate diagnosed me but didn't know where to send me. I ended up at University Hospital in Pittsburgh and had the MVD surgery, I turned sour during the surgery and was told I should never have another surgery, I wouldn't make it.
I was pain free for nine years. Then the pain started again about three years ago. I had read about acupuncture working for some cases, I wanted an doctor who did acupuncture. I found one at the Cleveland Clinic, Dr. Robert Kelly, M.D. I have been going to him for over a year now and have been pain free since my second treatment. He has a website. He is straight forward, tells you from the start that he will know if he can help you by the fourth visit. I highly recommend him.
You might look into Upper Cervical chiropractor. It works for me and I don’t take any meds. It needs to be upper cervical. If you are interested I could ask my dr if there is one he would recommend in ohio.
HI! This is Missy MJpain, On this main page there is the tab that says Doctor's will give u a list in ur area or near but GOOD LUCK with getting treated for ATN cause it's every hard to fine medication the help releave the pain. I have had ATN for 61/2 years. I have been to numerous neurologists, Brain clinic & Neurosurgeon one of the best. Sorry to let you down but there is not much medication that works for ATN. My PCP has started taking care of my treatment cause I last my insurance due to going on Long term Disability from work from 9/25/12. I got my insurance from the stated which took half a year. My PCP prescribed different medication starting with Lyrica,Vicodin & xanax. Didn't take the edge off at all. My PCP changed all medication to Cyclobenzaprine substituted for Flexoral 10mg x3 daily as needed , Oxycodone 10mg x4 daily as needed, Alprazolam Substituted for xanax & Ondansetron substituted for Zofran. This change help me deal with the pain it doesn't go away 100%. I printed the page on ATN & handed it to my PCP thats why he gave me those medications. 1/28/14 I just went to my neurologist Shalu Singh MD in Steubenville Ohio 304-■■■■■■■■. I go to the other office in Weirton, Wv. I just seen her today & she said that there is nothing else that she can give me that I haven't tried. The pain meds & muscle relaxers do help but I do have my really bad days. My PCP is Shetty Atul in Weirton 304-■■■■■■■■. DO NOT DO Surgery like nerve blocks or impants. Nerve blocks the Neurosurgen will not do it cause to high risk & implants that they but near your nerve in your spine & I was told that it will not work. If this just started with u there is nothing you can do. if your in as much pain as I am then you might have to do what I doing right now. Filing for SSDI. You will be turn down but don't give up get a Lawyer. This is the worse diagnosis that anyone can have some call it SUICIDE DIAGNOSIS!!!! I hope this helps anyone that has ATN. Don't think of ur self as a drug seeker. I'm telling u that what I'm on now gets me through my day & if u can't sleep u can take Melatonin natural 10mg to start & also take over counter "Calcium,Magnesium&Zinc" All in one. Potassium 99mg & everyday health support Hair,Skin & nails. I am on my 3rd round for disability I have a strong case & I'm going for a hearing 15-18 months to wait. I'm going through Berger & Green. I give u luck & hope it helps. Melissa Freshour mjpain.
You might look into Upper Cervical chiropractor. It works for me and I don't take any meds. It needs to be upper cervical. If you are interested I could ask my dr if there is one he would recommend in ohio.
I went to an upper cervical chiropractor in Cincinnati for 9 months. It seemed to help in the beginning but I was still on meds(at a lower dose) After 9 months going 5 or six times a month and spending over two thousand dollars(it wasn't covered by my insurance) I didn't feel like the relief I was getting was enough to justify the cost so I stopped going He also wanted me to sign agreements to sign up for a certain number of visits and pay in advance or from a credit card they provided that charged in 4 installments. In the beginning I was going 3 times a week. Out of all the visits over 9 months he only did maybe 5 adjustments on me. The other visits he didn't do anything. I'm am sure this works for some people but you better have deep pockets to be able to pay for it or to see if it works.
I’m so sorry it didn’t work for you. I just want everyone to get the relief I have been lucky enough to get. It is expensive. I wish insurance would cover at least some of it. It would be cheaper for them neurologists, drugs and tests.
Its so hard dealing with the military when you have TN. anything that they don’t easily recognize gets you labeled. Most drugs aren’t on their formulary.
They constantly want to send me to the dentist (even after 2 MVD’s & 10+ years of pain)
I’m at my wits end.
They have always suggested Acupuncture… Which I thought was quackery but I’m willing to try ANYTHING at this point!!! I take gaba at 400 mg 3×d as well as carbamazepine. Nothing helps. I don’t expect to be pain free just want it to ease up.
I’M SCARED TO DEATH TO GO OUT IN THE WIND.
Julie, I would love to know the name of the doctor in Chicago you have seen for atypical as well as the procedures/medications the doctor has helped you with.
julie said:
cleveland clinic would be your best bet. i would of gone there after researching best place to go but i choose northwestern memorial hospital in chicago since i have family there. these large teaching hospitals have treatments my drs weren't aware of. i have been dealing with atypcial and my dr. at northwestern was one who diagx me with some weird form of atypical.
blessings and hope you find help soon.
if you would like my dr. info let me but he is in chicago. excellent dr for atypcial.
You need to look for a neurosurgeon from doctor list at top of this page.
Neurosurgeons know more about this disease. They will give you a second opinion even if surgery is not needed. Teaching hospital doctors are usually the best in this area.