I can't beleive I am still having so much pain around my incision after 13 weeks , I can be walking and all of the sudden I get this awful pain that litterly stops me from moving it hurts so bad but only for a few minutes. I can hardly touch the spot that is half way between the back of my head and ear.. it is so tender does anyone else have that or had that?
The doctor called confirmed I have a CFS but I missed his call he left the message on my machine.. This is ????? I am calling to see how you are feeling but it is not urgent , you do have a CFS leak like we thought we need to discuss the next steps to take.. I will call later this week. GEshhhhhhhhhhhhhhhhh .. So, I called the office and talk to his Assistant (she is amazing) and she said he was in clinic for the next two days and he wanted to know if I was still going to take my trip in 3 weeks back to Ontario.. I said yes, if he is not going to do anything I can go to ontario with pain or stay here.. ummmmmmmmm not even a question.. Well, he wanted to make a clinic appointment..(they are 15 min appointments) No can't I get in to see him within the next two weeks.. after the MRI, Spinal tab, having to go back the next day for more test.. I would like know what he found ,she said well he said he has more urgent people to see.. UMMMMMMMMMMMm he screwed up I said He needs to fix it , I am not living on med to cover up my pain. She was so sweet and said I understand I will try and fit you in but no promises..
Really, He said right after my MRI that I had a leak and we needed to pin point where it is coming from.. he said if it is coming from the bone easy fix.. steriods for a week or two and we can get it cleared up.. So if it is not urgent and he confirmed a leak then don't you think he would take the time to write the prescription so I can stop having such pain head pain that feels like a bad tooth ache? I am so angry that I can't do much and he doesn't think it is that important.. my face is twitching more , my pain is so bad I have a heating bag with me to gets some relief..
I really need to go see my family it has been two years.. I want to take the kids to Canada's wonderland and niagra falls.. they have been waiting and counting down.. If I don't go so he sees me for 15 mins , he might write a prescription or he might schedule another surgery.. but not for weeks.. I am so angry with him and hurt that he hasn't even discussed with me what they found although the technicians did.. All he has confirmed is one phone calls saying yes there is a leak and the other one we have found that is is a CFS leak just like he thought..
Has anone had a CFS leak? If so how long did you wait to have it repaired? or is this pain on the side of my head and the incision soreness normal after a CFS leak?
I could really use some help I am just so upset and confused on what to do..