I had this great idea that I would get laser to remove the hair that I was always had to tweeze from my eyebrows and lip. DON'T DO IT! The lady that did it decided to laser three spots under my chin together. I don't know why. It left a scar under my chin and my TN has not been in remission since. It had been in remission for about 5 months before that. I was so mad at her. Her husband, my doctor, thought I had contracted staph. Never again.
Hi Myshka,
Very interested in what you said here.... I agree.
When it returns after a remission, if I keep to minimal meds, it stays around longer....
If I can take enough meds to deal with the pain, it seems that I can come off the meds, or lessen them quicker...
something I also have discovered - after 10 years.... but did not realize until I read your reply...
I hate how when your brain is foggy from the meds that you do silly things.... you just have to laugh at yourself...
Like today making coffee, I put the measure of coffee for the plunger into my mug with milk instead of the plunger....
no matter, a good laugh and strained it out and put it in the plunger.... :0)
Like you say - hang in there..... hugs from GP (gail patricia)
Myshka said: So I'd love to hear more on this:
I notice a tendancy we may have to equate the level of our med dosage to the level of 'wellness' we obtain.
.................................
But, I want to point out how very important it is to not be in pain. NOT because it is so unpleasant, or worse!
NOT because it is so depressing -- and it is!
But please take a step back from the desire to reduce medications ( does anyone here not want to do that??)
But for one additional reason:
When our body is in pain -- and there is a loop of feedback, and it is known that having pain increases our ability to feel pain -- our 'circuitry' is forming patterns.
Patterns and habits have an ( in this case) ugly way of not wanting to change!! So, put simply, the longer you are in pain, the more the pain circuit becomes and established neurological route -- more and more quickly and easily accessed! ;-0
Hang in there, all!
Michele/myshka
HI, GP, thanks for your reply and thoughts on this!
Yeah... funny things do happen. I had to laugh, I'v e done almost hte exact seam thing.. almost pouring juice in my coffee,or milk ( intended for coffee cup) into my juice,. yucky! ;-) -
Back to topic ...... sometimes I think that mind-set is everything.
I"M noy sure, but were you saying that if you are in the position to try to get off meds ( 'in remission') that *that* is when you can get off -- or at least lessen the amt. quicker -- if only you take enough to actually keep pain at bay? -- as in , rather than reducing amt. too quickly and just trying to 'bear it'?
yeah, what a weird juggling act we live with,
In all the years Iv'e had these conditions, even though over time, each activity I eliminated from my life; and each med that works has gradually added a tiny modicum of improvement, adding htem one by one, slowly leading to some reduction in pain.... nonetheless, there had never beee single day when pain was gone
NOnetheless, when i feel relatively 'good', I cannot resist wondering if I can reduce the amyt. of medicine i take!!
But normally ( for me, anyway, and my neuro says this is the same thing that most of her patients say....) it's amazing how long it took for each med to reach optimal effectiveness vs. how, if I should accidentally skip the morning pharm. cocktail, how quickly the pain comes back to remind me that I do not get to skip the meds, at this point.
But, things can change!
again, hang in!
:-)
MIchele/myshka