Success stories for type 2 or nueropathic patients?

Yes. I had an injection (Ow!) directly into my Mental Nerve, and it relieved the pain, but only for a couple of hours. Though the treatment wasn't successful, at least it confirmed my doctor's suspicion of which nerve is damaged.

P-Stim is a relatively new device on the market. tiny electrodes on the ear emit a pulse every second, alternating on & off every 3 hrs. you wear it for 4 days (one treatment), & then repeat for a few treatments ( they are disposable). it’s designed to retrain the brain a bit like acupuncture interrupts or overrides the pain signals.



I haven’t heard of neural therapy. I’ll have to read up on it.

www.pstimus.com
I just googled it. It works under same principle as accupuncture for tn which I got in the ear and other areas.

Henry, Neural Therapy is not one injection, it's 20-40 injections in one session of some anesthetic like Lidocaine,glucose solution or any other substance.

the Pstim I saw it's for atypical face pains, which is good for start because we are so not TN and I hate the comparison

Very important article concerning TN1 versus TN2 by Dr. Ronald Brisman entitled Typical versus Atypical Trigeminal Neuralgia and Other Factors that may Affect Results of Neurosurgical Treatment. World Neurosurgery February 22, 2012 which can be found at http://www.trigeminalneuralgia-ronaldbrismanmd.com/Typical-ATNPS.html

What I believe his findings are, is you have to differentiate your pain in the trigeminal nerve distribution into different categories. Its not just "TN1" and "TN2". You need to take a further accounting of your symptoms in order to figure out if you will respond to neurosurgical procedures of MVD, gamma knife or rhizotomy.

So, if you have constant pain you need to differentiate between constant pain associated with typical trigeminal neuralgia and constant pain associated with "persistent idiopathic facial pain (formerly called atypical facial pain.)"

The constant pain associated with typical trigeminal neuralgia is often triggered by speech, tongue/mouth movement and dies down when the you are still for a few minutes. If you had paroxysmal pain (shock-like) pain of "TN1" and developed constant pain later, you are more likely to have typical trigeminal neuralgia. If you have a paroxysmal flare up and the constant pain is present but subsides when the paroxysmal pain subsides then you have typical TN. If the constant pain responds well to tegretol and trileptal. If you have these symptoms, you are very likely to respond well to neurosurgical interventions of MVD, Gamma Knife or rhizotomy.

On the other hand, what if you have constant pain that is persistent idiopathic facial pain is not triggered by movement of speech, eating, tongue, mouth and is not relieved by being still? What if being still often makes it worse? What if the pain is constant even if there is no flare ups of paroxysmal pain? What if the constant pain does not respond to tegretol or trileptal? Then the constant pain is unlikely to respond to neurosurgical procedures such as MVD, gamma knife and rhizotomy.

This is just one article in one journal, but I think it may help some of you and your physicians treating you.\

Has anyone had surgery and the results did not correspond with these preoperative symptoms?

Has anyone had surgery and the results did correspond with these preoperative symptoms?

really good info, Don. thanks for the thorough summary.

I have Trigeminal neuropathic pain (TNP) due to dental treatment and you can say idiopathic facial pain too, I did Pulse Radio Frequency and it didn't help me :( but it did help a friend of mine with the same idiopathic facial pain

Hi,

What is Pulse Radio Frequency?

Thanks,

JanetM

Thank you, Don, for this. Excellent information.

JanetM

Don said:

Very important article concerning TN1 versus TN2 by Dr. Ronald Brisman entitled Typical versus Atypical Trigeminal Neuralgia and Other Factors that may Affect Results of Neurosurgical Treatment. World Neurosurgery February 22, 2012 which can be found at http://www.trigeminalneuralgia-ronaldbrismanmd.com/Typical-ATNPS.html

What I believe his findings are, is you have to differentiate your pain in the trigeminal nerve distribution into different categories. Its not just "TN1" and "TN2". You need to take a further accounting of your symptoms in order to figure out if you will respond to neurosurgical procedures of MVD, gamma knife or rhizotomy.

So, if you have constant pain you need to differentiate between constant pain associated with typical trigeminal neuralgia and constant pain associated with "persistent idiopathic facial pain (formerly called atypical facial pain.)"

The constant pain associated with typical trigeminal neuralgia is often triggered by speech, tongue/mouth movement and dies down when the you are still for a few minutes. If you had paroxysmal pain (shock-like) pain of "TN1" and developed constant pain later, you are more likely to have typical trigeminal neuralgia. If you have a paroxysmal flare up and the constant pain is present but subsides when the paroxysmal pain subsides then you have typical TN. If the constant pain responds well to tegretol and trileptal. If you have these symptoms, you are very likely to respond well to neurosurgical interventions of MVD, Gamma Knife or rhizotomy.

On the other hand, what if you have constant pain that is persistent idiopathic facial pain is not triggered by movement of speech, eating, tongue, mouth and is not relieved by being still? What if being still often makes it worse? What if the pain is constant even if there is no flare ups of paroxysmal pain? What if the constant pain does not respond to tegretol or trileptal? Then the constant pain is unlikely to respond to neurosurgical procedures such as MVD, gamma knife and rhizotomy.

This is just one article in one journal, but I think it may help some of you and your physicians treating you.\

Has anyone had surgery and the results did not correspond with these preoperative symptoms?

Has anyone had surgery and the results did correspond with these preoperative symptoms?

Janet PRF is radio waves to the ganglion/base of the skull, with 40-50 Celsius degrees, considered the lightest radio waves with the smallest side effects.

BTW I have a friend from Arizona that after a dental procedure she was left with a flie tip in the root canal and it damaged her nerve and she began having TN 2 + TN 1. after 5 years she started chiropractic care + acupuncture and she is doing great

http://facepainhelp.com/profiles/blogs/acupuncture-chiropractic-care-that-does-work?xg_source=activity

Hi, how much does it cost to get a set of P-Stim? I live in Singapore and hope to try this out.

mrl said:

Henry-
I am so very sorry. I've not had to resort to PNS, nut acupuncture did help me bring the pain down a few notches. I am currently searching for a local doc who will try me on a new product on the market. it's called P-Stim. their HQ is in Indiana. you wear it on your ear, & the tiny electrodes work kind of like "pulsed acupuncture". I tried a trial model last Dec, & it did help! they are just so new that not a lot of doctors have seen it or adopted it yet. I pray you'll find some relief.

I do not know about cost, as I was hoping to have it partially covered by insurance; it does require a prescription (physician, nurse practitioners or physicians assistants). as far as I know, it is only FDA-approved, so you’d have to see if they can ship to Singspore. your doctor or provider should know, & the P-Stim company should know. here is an email you can try for inquiries. ■■■■■■■■■■■■■■■■. good luck!