# So HAPPY! **URL:** \ **Category:** Uncategorized Older than 1 year\ **Created:** [June 12, 2010, 10:21pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823 "2010-06-12T22:21:03Z")\ **Posts on this page:** 13\ **Page:** 1
**Author:** ![marina](https://avatars.discourse-cdn.com/v4/letter/m/f05b48/32.png) [@marina](https://forum.livingwithfacialpain.org/u/marina)\ **Post date:** [June 12, 2010, 10:21pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/1 "2010-06-12T22:21:03Z")
**I have to share my news with the ppl that know the pain im going through.Told my family but it didnt seem like a big deal to them.Since i increased my Gabapentin 2 days ago i FINALLY can say im pain FREE today.havent been able to say this in a long [time.Im](http://time.Im) hoping this is the beginning and not just a tease…Hope u all are having a pain free day!!** ---
**Author:** ![Katie](https://avatars.discourse-cdn.com/v4/letter/k/a4c791/32.png) [@Katie](https://forum.livingwithfacialpain.org/u/Katie)\ **Post date:** [June 13, 2010, 8:42pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/2 "2010-06-13T20:42:59Z")
Awesome! How much are you taking…I am on the same thing and it definetly helps, but I don’t think my dose is high enough. I am very very happy for you - and it’s great to hear the good news! ---
**Author:** ![marina](https://avatars.discourse-cdn.com/v4/letter/m/f05b48/32.png) [@marina](https://forum.livingwithfacialpain.org/u/marina)\ **Post date:** [June 13, 2010, 9:52pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/3 "2010-06-13T21:52:20Z")
Well the good news lasted a day…Woke up ok this morning and that stupid pain started again…Grrrrr but on a brighter side i can say i had one good day i guess…Katie right now im only taking 900 mg a day.Hmmmm do u have any side affects…WOuld like to know if we share them same affects… ---
**Author:** ![Liz\_K](https://avatars.discourse-cdn.com/v4/letter/l/d9b06d/32.png) [@Liz\_K](https://forum.livingwithfacialpain.org/u/Liz_K)\ **Post date:** [June 13, 2010, 11:47pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/4 "2010-06-13T23:47:38Z")
Hi Marina, Sorry it is back. Maybe you can increase the dose again. You may just not be on the optimum dose. I take 3600 mg. So it can be increased. Liz ---
**Author:** ![maureen\_mccart](https://avatars.discourse-cdn.com/v4/letter/m/e68b1a/32.png) [@maureen\_mccart](https://forum.livingwithfacialpain.org/u/maureen_mccart)\ **Post date:** [June 14, 2010, 12:39am UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/5 "2010-06-14T00:39:23Z")
Sorry the pain is back, the neurontin can be increased to 3600mg/day. when i was on this dose i felt impaired but pain was better managed. the dose worked for about 4-6mth then came back. boy no easy answers. remember your not alone - - i find less alone myself when i read and connect with other tn patients. let me know how your doing. regards maureen marina said: > Well the good news lasted a day…Woke up ok this morning and that stupid pain started again…Grrrrr but on a brighter side i can say i had one good day i guess…Katie right now im only taking 900 mg a day.Hmmmm do u have any side affects…WOuld like to know if we share them same affects… ---
**Author:** ![Katie](https://avatars.discourse-cdn.com/v4/letter/k/a4c791/32.png) [@Katie](https://forum.livingwithfacialpain.org/u/Katie)\ **Post date:** [June 14, 2010, 5:03am UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/6 "2010-06-14T05:03:36Z")
Marina, I think I have a little memory loss from the 1200 mg I am on, but it isn’t too bad. I tried topamax and that made me a vegetable. I am pregnant right now so they won’t increase my dose until i have the baby. I am curious to see what dosage I will be able to handle. But I did realize that 900 did not work for me. Hopefully you can find relief in increasing your dosage without too many side effects. Best of luck!! ---
**Author:** ![marina](https://avatars.discourse-cdn.com/v4/letter/m/f05b48/32.png) [@marina](https://forum.livingwithfacialpain.org/u/marina)\ **Post date:** [June 14, 2010, 7:12pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/7 "2010-06-14T19:12:46Z")
Im scared to increased my meds.Im a working mom and find when i take the meds they make me sleepy.Hard when im at work cuz im a nurse working with the elderly.Im hoping and praying that this nasty TN dont take my job away.God its fustrating… Katie said: > Marina, I think I have a little memory loss from the 1200 mg I am on, but it isn’t too bad. I tried topamax and that made me a vegetable. I am pregnant right now so they won’t increase my dose until i have the baby. I am curious to see what dosage I will be able to handle. But I did realize that 900 did not work for me. Hopefully you can find relief in increasing your dosage without too many side effects. Best of luck!! ---
**Author:** ![marina](https://avatars.discourse-cdn.com/v4/letter/m/f05b48/32.png) [@marina](https://forum.livingwithfacialpain.org/u/marina)\ **Post date:** [June 14, 2010, 7:14pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/8 "2010-06-14T19:14:34Z")
How do u feel with 3600 mgs…Are u sleepy alot…Thats what im scared off.Being sleepy and trying to live a normal life.But i guess TN dont allow us to live normal… Liz K. said: > Hi Marina, > Sorry it is back. Maybe you can increase the dose again. You may just not be on the optimum dose. I take 3600 mg. So it can be increased. > Liz ---
**Author:** ![Liz\_K](https://avatars.discourse-cdn.com/v4/letter/l/d9b06d/32.png) [@Liz\_K](https://forum.livingwithfacialpain.org/u/Liz_K)\ **Post date:** [June 15, 2010, 2:35am UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/9 "2010-06-15T02:35:46Z")
Marina, I am sleepy but I believe it is from the trileptal and not the neurontin. I didn’t get sleepy until after I started the trileptal. And maybe you will be able to find the right combination of drugs that allow you to live a normal life. Liz ---
**Author:** ![maureen\_mccart](https://avatars.discourse-cdn.com/v4/letter/m/e68b1a/32.png) [@maureen\_mccart](https://forum.livingwithfacialpain.org/u/maureen_mccart)\ **Post date:** [June 24, 2010, 1:52am UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/10 "2010-06-24T01:52:30Z")
Hi Marina, hope all is well and pain is too bad. my side effects from neurontin were sedation/slowed thinking/yawning+++/sleepy+++/feeling stoned/slowed response times to communicate or move - hope you are ok on the meds maureen mccart said: > Sorry the pain is back, the neurontin can be increased to 3600mg/day. when i was on this dose i felt impaired but pain was better managed. the dose worked for about 4-6mth then came back. boy no easy answers. remember your not alone - - i find less alone myself when i read and connect with other tn patients. let me know how your doing. regards maureen > marina said: > > > Well the good news lasted a day…Woke up ok this morning and that stupid pain started again…Grrrrr but on a brighter side i can say i had one good day i guess…Katie right now im only taking 900 mg a day.Hmmmm do u have any side affects…WOuld like to know if we share them same affects… ---
**Author:** ![Marcy3](https://avatars.discourse-cdn.com/v4/letter/m/c0e974/32.png) [@Marcy3](https://forum.livingwithfacialpain.org/u/Marcy3)\ **Post date:** [June 24, 2010, 6:08pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/11 "2010-06-24T18:08:23Z")
HI Marina Glad to hear about your pain free day, I am having one also, or should I said so far so good, yesterday I went to my pain management Doctor and now he upped my Dilantin and is also having me take Lyrica…the Lyrica were samples I told him the insurance company wouldn’t pay for them for a months supply they come to $245.00 I will have to find another insurance company, hopefully someone will pay for them…sorry I rattled on, I am glad you are doing ok…word of advice don’t over do…because generally when I feel good I tried and tackle all the jobs I let go, and then I am sorry later…Take Care Marcy ---
**Author:** ![jamie\_leigh](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/jamie_leigh/32/3546_2.png) [@jamie\_leigh](https://forum.livingwithfacialpain.org/u/jamie_leigh)\ **Post date:** [June 25, 2010, 3:19am UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/12 "2010-06-25T03:19:06Z")
I’m so happy for you Marina:) ---
**Author:** ![Kristin\_F](https://avatars.discourse-cdn.com/v4/letter/k/f1d935/32.png) [@Kristin\_F](https://forum.livingwithfacialpain.org/u/Kristin_F)\ **Post date:** [June 25, 2010, 12:22pm UTC](https://forum.livingwithfacialpain.org/t/so-happy/823/13 "2010-06-25T12:22:25Z")
I take 1200mg a day of tegretol and 300mg a night of neurotrin. I am ok most days but worse in the afternoon. Talking bothers me, chopping veggies, wind, etc. I take neurotrin at night for my legs and back. They recently switched me to gababentin the generic brand and I found it does not work as good. They are switching me back thank god. The tegretol does make me forget things and a little sleepy. I don’t drive. I do my best a work. It is hard. I wish we could all wake up one day feeling ourselves again. One can dream!