Trish,
I’m glad your procedure was a success! I have not had this procedure, but I did have a comment about your continued dull pain/pressure in the same area. My ENT (who is good) was also certain this pain/pressure was a sinus problem. So much so that I ended up having sinus surgery. When I woke up post-op, I was devastated that the pain was still there. This was before I was diagnosed. Morale of the story, the pain you are feeling could very well be related to one of the trigeminal nerve branches & not necessarily your sinuses. Good luck!
Hello all, I have had both the V2 & V3 nerves Subcutaneous Rhyzotomy procedures done in 2012 & Feb 2014. So far so good. Dr Grande at the U of M hospital in Minneapolis has been great.
mrl,
How did your doctor determine the dull pain/pressure was trigeminal nerve related? I am now able to read without triggering a massive headache, but this “dull pain/pressure” increases. I wonder if the nerves relating to reading can somehow be tested.
Also, The genetic syndrome I have, Ehlers Danlos Hypermobility affects collagen/connective tissue throughout the body. Since there is a lot of connective tissue in the eye and nerves that affect movement of the eye, I wonder if EDS is somehow contributing to the pain.
Thank-you very much for your input!
Trish
Trish-
it was a diagnosis of exclusion. once we found the surgery didn’t work, my other symptoms led a doctor friend of mine to question whether TN was the cause. everything fit, & once treated with gabapentin, the pain subsided. your EDH may very well be a factor. wish I could help more… good luck.
mrl
Could you share the Dallas ones? I'm just north of Plano. Thanks.
mrl said:
Trish-
Below are docs in Houston that have been used by patients on this web site. There are also some good ones in Dallas, though I know that's a bit far to travel. Hope this helps.
Houston
Dr. Randolph Evans
Dr. R. Achari, MD
Dr. R. Harper, MD
West Houston Hospital
Dr. Karl King
St. Lukes Hospital
Dr. Viswanathan
Mischer Neuroscience Institute at Memorial Hermann.
Dr. Dong H Kim., Neurosurgeon
http://www.memorialhermann.org/physiciansearchmh/PhysicianDetail.as...
MD Anderson
Dr. Ashwin Viswanathan
Neurosurgery
Dr Jonathan White
Neurology (specializing in facial pain)
Dr Joseph (Jodie) Vaughn
both are with UT Southwestern