# Post Rhizotomy **URL:** \ **Category:** New Member Introductions\ **Created:** [July 15, 2016, 5:27pm UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645 "2016-07-15T17:27:17Z")\ **Posts on this page:** 7\ **Page:** 1
**Author:** ![Nicole](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/nicole/32/605_2.png) [@Nicole](https://forum.livingwithfacialpain.org/u/Nicole)\ **Post date:** [July 15, 2016, 5:27pm UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645/1 "2016-07-15T17:27:18Z")
I wanted to check in after my surgery and tell you all how things have gone. I had rhizotomy of 9 and MVD of 10 on June 23rd. I just took a drastic drop on my medication this week and have no pain! There is some burning when I drop, but that passes in a day. I "woke up"yesterday after being so sedated, off balance and having horrible bouncing vision for over a year. I was marveling at the beauty of everything yesterday. There had been no obvious compression on either of the MRIs I had. When the surgeon went in, he found compression of both 9and 10. He spent most of his time decompressing 10. I woke up with no swallowing difficulties and my voice was unchanged. He said decompressing 10 rather than cutting upper rootlets was a better approach to lesson the chances of major complications. He is dropping the medication slowly. He believes in being more conservative with the discontinuation of the medication. I my first post on this site was my fear of this procedure and having deficits after surgery. I am so glad I went through with it. I was having to raise my medication every week to control pain even though I was already on 2900 mg of Trileptal, 3600 mg of Gabapentin, and 400 mg of Lamictal. I have liver damage from the drugs, I broke my nose and two ribs, and bruised my spleen falling from the side effects of the medication. I hope this helps those thinking about surgery. I wish I had done this before so much damage had been done to my body. I am 40 years old and was a complex patient. I have CNS lupus and Sjorgren’s syndrome. They managed to keep the procedure safe and the recovery as comfortable as possible. This was my second brain surgery with the same surgeon. I came out of surgery with the same function as I went in. I am down to 1900 mg of Trileptal and 2600 mg of Gabapentin. This drop was done over a week. No return of the stabbing electric pain that once dropped me the floor and stopped my breathing. Please believe there is hope. I had lost mine. Love and prayers for everyone here. We are all brave and strong. I have hope again. I believe I will get off all of the medication. I hope this helps. ---
**Author:** ![Gloria37](https://avatars.discourse-cdn.com/v4/letter/g/96bed5/32.png) [@Gloria37](https://forum.livingwithfacialpain.org/u/Gloria37)\ **Post date:** [January 9, 2017, 2:10pm UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645/2 "2017-01-09T14:10:51Z")
Nicole, I also had a rhizotomy in July. How are you doing now. What are your results after 6 months out? Gloria ---
**Author:** ![Nicole](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/nicole/32/605_2.png) [@Nicole](https://forum.livingwithfacialpain.org/u/Nicole)\ **Post date:** [January 9, 2017, 5:31pm UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645/3 "2017-01-09T17:31:37Z")
I am on a small amount of Gabapentin, but basically pain free. It took a long time to wean off of the drugs and had rebound discomfort during the process. It was a God send. How are you feeling? ---
**Author:** ![Gloria37](https://avatars.discourse-cdn.com/v4/letter/g/96bed5/32.png) [@Gloria37](https://forum.livingwithfacialpain.org/u/Gloria37)\ **Post date:** [January 10, 2017, 12:14am UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645/4 "2017-01-10T00:14:57Z")
Thanks for your answers. I am glad things are going well for you. I still have the numbness and itching. But compared to the electric shocks I am pleased. I have a brain tumor on my brain stem that touches my Trigeminal nerve. I am just glad for the relief. Hope things will stay good for you. Gloria ---
**Author:** ![Nicole](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/nicole/32/605_2.png) [@Nicole](https://forum.livingwithfacialpain.org/u/Nicole)\ **Post date:** [January 11, 2017, 5:37pm UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645/5 "2017-01-11T17:37:20Z")
I’m glad your pain is better. There is really nothing worse. My ninth cranial nerve and tenth cranial nerve were compressed by an artery. Is the tumor operable. I had an amazing surgeon at Cedars Saini in Beverly Hills. If you would like his information, just let me know. I’m praying for you. ---
**Author:** ![Gloria37](https://avatars.discourse-cdn.com/v4/letter/g/96bed5/32.png) [@Gloria37](https://forum.livingwithfacialpain.org/u/Gloria37)\ **Post date:** [January 13, 2017, 2:51pm UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645/6 "2017-01-13T14:51:33Z")
The tumor is supposedly inoperable. My age, over 70, and the fact that it’s in the most inoperable place,brain stem, makes it a to risky. I am down to one pill now. The itching needle pricks and the numbness can be irritating at times. I will opt for the rhizotomy again if the excruciating pains return. Thanks for the doctor information. An east coast-west coast thing. God bless. Gloria ---
**Author:** ![Nicole](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/nicole/32/605_2.png) [@Nicole](https://forum.livingwithfacialpain.org/u/Nicole)\ **Post date:** [January 27, 2017, 5:37am UTC](https://forum.livingwithfacialpain.org/t/post-rhizotomy/12645/7 "2017-01-27T05:37:59Z")
You are in my prayers. I am glad it has gotten better. God Bless!