My Geniculate Neuralgia Story Starting w/Shingles & a TN diagnosis

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Thanks Jacki...I know we're both in the same boat and I wish you well my friend. You are very kind!

PeacenLove~Always~Laurel
Jackie said:

Laurel, I wish you well with whatever treatment you have. I have you in my thoughts.
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Thank you Kerry for taking the time here. At present I am not doing so well,everything at once it seems. I so wish you weren't treated so badly down there...you MUST find a compassionate doctor. Look up Brain and Spine Specialists in your area or state. I wish you the very best my friend. Let me know how you're doing.

PeacenLove ~Always~Laurel

kerry said:

Laurel

I can relate to your story in so many ways :). Death wish, to incorrect diagnosis', to so many meds, horrible nerve block experience for the last 2 years.

I too started off with the worst earache I've ever had in my life. I told everyone it was like a screw driver in my ear 24/7 and all the doctors kept trying to treat the "hematoma" or large purple polyp in my ear with ANTIBIOTICS for months. I had nerve damage hearing loss, nystagmus, nausea, low grade fever, swollen glands, and pin size red dots all over the body. The 5 ENT's I saw never put or thought to test me for shingles. Just recently a Godly friend of mine came across literature online that may have found the reason for my pain-Post Herpetic Neuraliga. After my Mastoidectomy in 2012 to remove the blood clot in my ear and now that the pain has traveled to the nerves in my face, eye and arm, I am trying to get into an infectious disease doctor.

Sorry, I know we have a discussion on another page, but this was a more concise way on giving you my background and hope it makes more sense. I'm just so frustrated and don't quite understand how a doctor is not connecting the dots. It is so utterly frustrating that they keep wanting to give me pills to treat the symptoms rather than help me find the cause.

Thanks so much for opening up and sharing your struggle. I would love to hear more about your tests and how you got doctors to listen to you. I hope you are well and feeling better and your treatments are helping you! Please keep us posted :) Take care!!

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Thanks Dr. for taking the time...I hope you got the link from Jackie. PeacenLove~always Laurel

DR. J said:

Check out Dr. Walter Crooks in Houston, TX

http://noneuropathyhouston.com/

Excellent information.

DR. J