MVD with Type II

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Nothing at all wrong with your memory, Red, and you've never misled me. I appreciate you re-posting the abstract. This is one of those studies where it will be very beneficial to read the entire paper to see how they defined the groups. As you know, there is often a lot of overlap with symptoms and diagnoses. Obviously, our surgeon must have been pleased with the nerve test results, and my wife may actually have a larger TN-1 component to her total picture than we have assumed. Once I read the entire paper, I'll be in a better position to ask her surgeon how he arrived at his fairly optimistic 70% estimate. Thanks again, Allen
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I have ATN
I done an mvd at 2010
It didn’t help and i think it made the pain worse
After the surgery i start to have face sensitivity that I didn’t have before the surgery

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tomey, I am so sorry your MVD failed. There are several other posts on this page regarding ATN and outcomes from MVD. Red has posted a study. I myself have ATN and atypical GN. I did see a neurosurgeon recommended on this web site and he was very frank with me. He only does MVD for true TN, the electric-shock like pain of which I do not have. Mine is 24/7.

When this all started again after almost 20 years of remission I wanted to get it fixed! However this surgeon was very honest with me and said he did not want to make me worse. Even the other options like rhizotomy, gamma knife and RF which my neuro thought I might benefit from he said no. I have a lengthy post on this page. I have had more neck and back surgeries than I have fingers and toes and believe me things go wrong. Therefore I have posted some info about PNS on this page. Nerve stimulation. I am very interested in finding a doctor that does this in Florida. And since my post in January I did have surgery recommended by 2 surgeons to stabilize my lumbar spine doing a pelvic fixation with a lot of metal hardware and I did come out of it with another nerve injury. Severe pain for months. I had it April 1st and after 6 months I am just now beginning to heal. I now have 2 dropped feet and need to wear braces on my legs. I do understand failed surgery.

Keep working with your neurologist on medications. I finally found a combination I can tolerate that is helpful 50% of the time. I failed on tegretol, lyrica and cymbalta. I take a low dose of baclofen, gabapentin and amytripiline which was added to help me with my back pain and a few months later my ATN was better managed.

I get this face sensitivity you have. But you do not say what it feels like. I have a cold sensation and like most TN and ATN sufferers can not tolerate cold, cold winds and even ceiling fans. Take care, Sharon