Kim. He came highly recommended and is "famous" for some of the work he has done on a certain congress member. I was disappointed because I felt he was blowing me off after the surgery. My PCP, neurologist and pain management doctors are all in agreement that the surgeon (Kim) should have been the one to diagnose the issue with the mastoid bone after the surgery at the follow up visit 8 weeks after the surgery instead of telling me to give it more time. So because he did not, I have had the infection, intense pain and headaches for 14 months. On top of it all the TN is coming back. The cost of treatment has been unbelievable and I reached out of pocket expenses without a major medical procedure this year. I will have to look up your doctor just in case I have to do something else about this situation. I wish you the best of luck and keep us posted!!!!!!!!
houston man said:
My surgeon is some messed up name, it starts with a vibvkanathan, or something like that, anyway, he's out of baylor. I see him next Monday. Who was your's?
Mary N. said:I am also in Houston and had MVD done 14 months ago. I had complications from the surgery. I am currently being treated for mastoiditis. I had all the indications of it 2 months after the surgery but my surgeon told me that I had not given myself time to heal. I am on IV antibiotics now in my 5th week with at least a couple more to go. Had I not gone to my PCP about the pain that everyone was convinced was entrapped nerves in the incision Lord only knows how long it would have taken them to find the bacteria that I have had in my skull for over a year. I have also had a headache since the day I woke up from the surgery. I got my first set of Botox injections for the headaches this past Friday -- 2 weeks to start to see results and 6 weeks to know if it is the answer. May I ask who your surgeon in Houston Is? I wish you the best of luck. Mine was not so good after the fact with complications and the TN is starting to raise it's nasty head again.
houston man said:I have only been on meds for a couple of months now without any relief. My doc just doubled the dose on the Gab/nur. I told him I was only willing to try the med route for only so long. He agreed and gave me a referial for a nuero-surgen. I go see him in 10 days. I'm going to tell him the same thing I told the other doctor. I hate the meds, I hate how they make me feel, I'd rather just have the MVD. Explain that to your mom, maybe she'll understand, maybe not.
I think most people fail to really understand just what it is we live with. Today I sneezed and I thought my head was going to explode. It hurt so bad I had to fight to keep control of my car as tears fell from my eyes. For the rest of this day that pain has been coming like waves. In and out, in and out. I just want to go home and take a couple or a few hydrocodones and put the pillow over my head.
Anyway, hang in there. Don't be mad at your mom, she's just worried. She doesn't want to you to live with the pain, she just doesn't want to have to live without you. Help her understand what's really involved with the MVD