July 1, 2014…sad and still on Neurontin…they are making the dosage higher and higher. I hate my life!!! I really do!
Dear spikiegirl, Please do not give up. Have you tried acupuncture? It has changed my life, and it doesn't hurt at all. They only put 4 needles in my face and one in my hand. The Neurontin and Tegretol didn't work on me as well. Have you tried Flexerol (a muscle relaxer)? I am so glad I found this blog, people just don't know unless they are going through it as well.
Good luck, Debbie (Tabby)