I totally agree what you have said bet6252..and I cannot tell you how happy I am that you have had a positive story to tell...but I believe that everyone should be aware of all the facts going into such invasive surgery...Trust me when I tell you that had I been offered the operation when I was in hospital three weeks ago I would have said YESSSSSSSSSSSSSSSS.....a 1000% yes...BUT....after getting home and having MRI etc etc and seeing the surgeon who really gave me less than 10 mins before booking me in for a MVD...trough a translater..as he is French...I did look into it a bit more...discovered this site...discovered that for TN type 2 it can be a bit hit and miss...and also discovering that the titanium used in surgery of this kind has 4% nickel in it....and I am alergic to Nickel...so my condition would have been made so much worse...Also no one bothered to take my medical history, and I had shingles...Herpes Zoster...on both side of my face less than a year ago...Through this site I discovered it was actually dangerous to have the operation with this virus still in your body...So I really have not ruled out MVD a bit further down the line...but it will be with a surgeon I trust...A surgeon I can understand....and more importantly a surgeon who is aware of all my medical history before he operates....I am so pleased that you are pain free...this is what we all want with type 1 and type 2 TN.....I really hope that you continue to get better and that you are rid of this horrible afflication for the rest of your live...take care...
I have since found out the there is a test called MELISA which can determine if you are allergic to metal used in surgical procedure...Sadly this is not available in the UK but it is used in the US and Europe...so anyone who ..like me...has this allergy can have this simple test done to see if we can ever have titanium used in a surgical procedure...If you test positive you need to carry a card warning of this...just in case..please God it dosnt happen....but just in case you are involved in an accident of any description and cannot tell Drs and surgeons that you cannot have surgical titanium implants....good luck xx
Hi Tammy....thank you for your input..Sadly I am in Europe...I live in both France and Spain...and sadly they are not as up to speed with TN or ATN any really any form of Nuralgia....but possibly one day they will catch up to the States....
Thank you Tammy again.....You are right..This disease is awful...and so many people suffer from it...I will say some little prayers for you and your mum..and too all TN and ATN suffers anywhere xxx