# Headaches ever day TN1 and TN2 **URL:** \ **Category:** General TN & GPN (Old Site)\ **Created:** [September 23, 2015, 9:30pm UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313 "2015-09-23T21:30:29Z")\ **Posts on this page:** 10\ **Page:** 1
**Author:** ![Amy\_Sal](https://avatars.discourse-cdn.com/v4/letter/a/838e76/32.png) [@Amy\_Sal](https://forum.livingwithfacialpain.org/u/Amy_Sal)\ **Post date:** [September 23, 2015, 9:30pm UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/1 "2015-09-23T21:30:29Z")
I have had both tn1 and tn2 pain for almost two years and recently I've had headaches every day for more than the entire summer and have to take full dose asprine twice a day every day. Does anyone else have this problem? ---
**Author:** ![Sunshine2](https://avatars.discourse-cdn.com/v4/letter/s/cab0a1/32.png) [@Sunshine2](https://forum.livingwithfacialpain.org/u/Sunshine2)\ **Post date:** [September 24, 2015, 12:14am UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/2 "2015-09-24T00:14:41Z")
Hi Amy hope you are feeling better today, yes I experienced really bad headaches and right eye pain everyday for well over a year, along with TN pain, my neurologist gives me botox injections across my forehead all down to my neck, these have helped take the edge of the constant pain. ---
**Author:** ![jstagrl29](https://avatars.discourse-cdn.com/v4/letter/j/c68b51/32.png) [@jstagrl29](https://forum.livingwithfacialpain.org/u/jstagrl29)\ **Post date:** [September 24, 2015, 2:53pm UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/3 "2015-09-24T14:53:54Z")
YES most definately in the beggining. I had headache that never went away.for 6 months I wanted to die it was so excruiating all the time. I couldn't take it anymore. I am now on nortriptyline 75 mg a day which takes my pain away I am very thankful for that. ---
**Author:** ![justjane37](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/justjane37/32/5321_2.png) [@justjane37](https://forum.livingwithfacialpain.org/u/justjane37)\ **Post date:** [September 26, 2015, 12:14am UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/4 "2015-09-26T00:14:33Z")
Hi, Yes. I was getting migraines every single day for about six months with severe ATN symptoms around my left eye. I have talked with many other TNers that have headaches, migraines, or cluster headaches as well. It is literally hell on earth. As if ATN isn't enough to deal with right Jane ---
**Author:** ![Evee\_G](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/evee_g/32/2448_2.png) [@Evee\_G](https://forum.livingwithfacialpain.org/u/Evee_G)\ **Post date:** [October 1, 2015, 3:15pm UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/5 "2015-10-01T15:15:37Z")
I a Suffer from TN1 and TN2 and have constant headache and facial pain. Tegretol helped take the edge off of the pain for almost 3 years an has now stopped working. I see you suffer from TN1 and 2 as well. I am curious if you also suffer from burning sensation patches on your skin on various parts of your body? Does anyone else have this sensation? ---
**Author:** ![justjane37](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/justjane37/32/5321_2.png) [@justjane37](https://forum.livingwithfacialpain.org/u/justjane37)\ **Post date:** [October 4, 2015, 7:35pm UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/6 "2015-10-04T19:35:02Z")
If you haven't tried acupuncture you should. It helped with my migraines a lot ---
**Author:** ![Diane6](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/diane6/32/1882_2.png) [@Diane6](https://forum.livingwithfacialpain.org/u/Diane6)\ **Post date:** [October 9, 2015, 9:48pm UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/7 "2015-10-09T21:48:28Z")
My arm burns horribly Evee. Did a doctor suggest a connection? I have TN1 and TN2 also with electric shocks, temple and facial pain and my favorite, the eye hurts. Evee Goldeen said: > I a Suffer from TN1 and TN2 and have constant headache and facial pain. Tegretol helped take the edge off of the pain for almost 3 years an has now stopped working. I see you suffer from TN1 and 2 as well. I am curious if you also suffer from burning sensation patches on your skin on various parts of your body? Does anyone else have this sensation? ---
**Author:** ![LOIS\_E\_C](https://avatars.discourse-cdn.com/v4/letter/l/74df32/32.png) [@LOIS\_E\_C](https://forum.livingwithfacialpain.org/u/LOIS_E_C)\ **Post date:** [October 10, 2015, 12:20am UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/8 "2015-10-10T00:20:52Z")
I get headaches around my left eye (in addition to pain on left side of my face). I take tegretol (carbamazpine) and gabapentin but when the extremely painful eye happens, I take Imitrex (sumatriptan) or Maxalt, both for migraine, but also works for TN. ---
**Author:** ![Lisa\_iamrite](https://avatars.discourse-cdn.com/v4/letter/l/7ba0ec/32.png) [@Lisa\_iamrite](https://forum.livingwithfacialpain.org/u/Lisa_iamrite)\ **Post date:** [October 13, 2015, 2:31am UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/9 "2015-10-13T02:31:32Z")
Yes to the headaches. And I would suggest talking to your neuro about botox injections to help both the pain of TN and the headaches. I think my headaches were caused by the tensing my body did from all the pain. Hypertension is known to cause intense headaches. ---
**Author:** ![shadow2](https://avatars.discourse-cdn.com/v4/letter/s/6de8d8/32.png) [@shadow2](https://forum.livingwithfacialpain.org/u/shadow2)\ **Post date:** [October 18, 2015, 5:07pm UTC](https://forum.livingwithfacialpain.org/t/headaches-ever-day-tn1-and-tn2/8313/10 "2015-10-18T17:07:56Z")
My frequent headaches were brought under control for the most part when I added nortriptyline. It has helped quite a few of us here. As I am still on gabapentin I did not notice any side effects from the nortriptyline. I do take it at night so I think it helps me sleep.