It very well sounds like a computer issue. Did the prescribing doctor send it to the pharmacy by computer? In which case, I would call the doctor. If worse comes to worse, ask for a paper prescription and hand carry it to the pharmacy.
I have had many problems with the new scripts showing up on the computer. I called my doctor, and she got it straightened out.
Sounds like my last Pharmacy experience as I said previously. It is amazing how you only introduced one little change and it totally confused them! Switching pharmacy seems like the only solution as you may very well have to change doses again in the future or to another med.
shadow2 said:
nwaring, I'm not sure where you got the idea that I was trying to fill my prescription before the 30 days??
According to my patient portal, my script states 3x100 mg, 3x daily. My neuro wrote it that way because he wanted me
to gradually increase as needed/tolerated. However, the script is showing filled one time previously and the pharmacy has
that at total of 6x100 mg daily. I'm not really sure where the disconnect is but the pharmacy is not helping to fix it. If they
would say what is wrong, it would help. I made the mistake of saying the neuro could call in the script and the tech seemed to melt down on that one. This is a major chain and it is a pharmacy issue as they get a lot of complaints.
Hello, Just sounds like Your Dr needs to get a new prescription on file with the pharmacy... I've had TN for almost 2 years now and take both Gaba & Trileptel. I even had a Rhizotomy done last Nov.
FYI, any dosage changes should accompany a new prescription. Just have the DR change the pill quantity too... This seems like an easy issue to correct...
I had a rhizotomy about 10 weeks ago. Iāve weaned off the tegretol but Iām still taking 900mgs of gabapentin 4 times a day. Iām going to start weaning off those too. I donāt know how this is possible, but my numbness is going away and I can feel my damn face again! Plus, I have a lot of my pain around my eye which they said they couldnāt numb. I get so much gabapentin at a time they just give me the giant bottles it comes to them in! 3 of them! I think itās 1500 capsules at a time. Crazy.
Hello, Just sounds like Your Dr needs to get a new prescription on file with the pharmacy... I've had TN for almost 2 years now and take both Gaba & Trileptel. I even had a Rhizotomy done last Nov.
Congratulations HCal. Hope your pain stays away. I have been fighting TN for two years. Had two periods of remission, but now it is back. I also am on gabapentin taking 600 mgs 4 times per day. Also seeing a chiropractor who is doing Active Release Therapy on me. So far ART doesn't seem to be helping other than I am able to live with the pain I have. It comes and goes during the day. Just before going to bed I take .5 mgs of clonazepam and I sleep like a baby for at least 8 hours. I don't really like taking the drugs, but also am not anxious to have a MVD. My hope is someone comes up with a better solution than invasive anything or drugs.
I wish I was pain free. Iāve had two mvds, gamma knife, and a rhizotomy in the past 20 months. I still have a lot of pain somehow. Iām getting off all of the meds, even if Iām miserable, so we can evaluate whatās going on with me without the meds interfering. I hope they find a cure soon!
Hi shadow2, just realized it's been about 4 days since you posted your pharmacy problem, did you get things straightened out?
Hope so!
Take care,
Cheryl
I would like to post a comment on meds and invasive procedures, even though RF and Rhizotomy are considered to be less invasive. I am taking meds, a combination of gabapentin, amytripiline, baclofen and percocet, all low dosages. I am atypical TN and GN. I only get mild to moderate relief from meds or no relief. I can not have MVD or any of the other procedures because I am atypical. A neurosurgeon from this site in Tampa, USF teaching hospital simply told me he did not want to make me worse. Most of you that have commented on this thread have typical TN and still have not gotten pain free. There are neurosurgeons that will operate on atypcial pain and so many of them are confident they will be able to help someone who is typical TN but I am sure they have to tell you there is a possibility of failure and perhaps causing more pain.
I am trying to find someone in my area that does PNS or Motor Cortex nerve stimulation for both types of TN. I have read a few discussions of those that have tried this and are doing better. So far none of them have responded back to me where they are getting this treatment as I would leave Florida to go elsewhere for this treatment. I think some of this is in the trial stages. My neuro knows nothing about it. Nor does the teaching hospital in Tampa. This is an alternative treatment for this type of pain. Once you have exhausted all the meds and some of you have had multiple procedures done with no relief, this nerve stimulation may be the next step.
Anyone that has had this procedure please respond. Thanks, Sharon
Where are you located? Dr. Joseph S. Neimat at Vanderbilt in Nashville, Tennessee did a ballon compression on TN for me but, would have done an MVD but I had a similar surgery to left side of brain for MĆ©niĆØreās Disease so was not a good candidate. However, options were discussed and I chose the ballon compression which was done done almost 3 yrs ago. No meds and no pain now. Here is a link. Hope it helps.
http://www.mc.vanderbilt.edu/root/vumc.php?site=neurosurgery&doc=16375
I would like to post a comment on meds and invasive procedures, even though RF and Rhizotomy are considered to be less invasive. I am taking meds, a combination of gabapentin, amytripiline, baclofen and percocet, all low dosages. I am atypical TN and GN. I only get mild to moderate relief from meds or no relief. I can not have MVD or any of the other procedures because I am atypical. A neurosurgeon from this site in Tampa, USF teaching hospital simply told me he did not want to make me worse. Most of you that have commented on this thread have typical TN and still have not gotten pain free. There are neurosurgeons that will operate on atypcial pain and so many of them are confident they will be able to help someone who is typical TN but I am sure they have to tell you there is a possibility of failure and perhaps causing more pain.
I am trying to find someone in my area that does PNS or Motor Cortex nerve stimulation for both types of TN. I have read a few discussions of those that have tried this and are doing better. So far none of them have responded back to me where they are getting this treatment as I would leave Florida to go elsewhere for this treatment. I think some of this is in the trial stages. My neuro knows nothing about it. Nor does the teaching hospital in Tampa. This is an alternative treatment for this type of pain. Once you have exhausted all the meds and some of you have had multiple procedures done with no relief, this nerve stimulation may be the next step.
Anyone that has had this procedure please respond. Thanks, Sharon
Oh yeah, I just get full of anxiety everytime I go in for refills on my scripts ,they give you that look like I,m some kind of addict . would like to tell them if they could feel what I feel just for an hour, then what there reaction would be. They make me feel like ,m doing something wrong, I just hate it!!
I get my gabapentin by mail order. No traveling to the pharmacy to fill it monthly. I get a 3 month supply with refills and no problems getting it on time. Plus there is usually a "zero" copay by mail order. Most insurance's have mail order. Mine is an advantage medicare plan. When I had private insurance, they also had mail order. Check your insurance plans for a mail order option. Sharon
II take my gabapenin for nervus intermedius neuralgia which is throbbing pain which originates in the ears. Does anyone else have this particular condition, so I can share notes?
Cheryl in Montgomery, Alabama
Hi Cheryl Lynn Moyer, there is a fairly recent discussion called "about pain" and you'll find it in "discussions" some people have posted pain in regards to ear pain, myself included. If I remember correctly that was how mine started around 2008 I think, Dr's couldn't find anything wrong and I just used over the counter ear drops which did help a bit but I could not tolerate loud noises or being around anyone, it seemed like any movement of any kind even around me would send sharp pains in my ear. I think that was when I started to isolate myself!
Cheryl Lynn Moyer said:
II take my gabapenin for nervus intermedius neuralgia which is throbbing pain which originates in the ears. Does anyone else have this particular condition, so I can share notes?
Cheryl in Montgomery, Alabama
Just to update on the pharmacy experience. I pulled the head pharmacist aside and he called my neuro. Later, when I picked up, the cashier told me the insurance company did not want to pay for all the pills. She said there was no problem with the size of my dose, just the number of pills. As my cost was only $22. for 270 100 mg vs. $3 for 90 300 mg. I opted to just pay for the 270 and have flexibility on my dose if I can tolerate taking a little less.
This thread has been very helpful and I appreciate all of the replies. Finding this site has been empowering and I am very grateful to the wonderful members and moderators.
shadow2, your insurance company has quantity limits. Since you aren't up to a 300 mg. dose yet and require the 100 mg. to dose as needed $22.00 is not too high of a copay. I have to have my narcotics done at my local pharmacy and any time I start a new medication I go first to the local pharmacy. I do have some pretty high co-pays for the narcotics, it varies month to month, sometimes as high as $50.00 but usually around $35.00. I use my mail-order pharmacy for my gabapentin and I have a 0 co-pay for a count of 180 per month of 300 mg. x 3 months is 540 pills. I did check on this quantity on line with my mail order and there was a co-pay but much lower than going through my local pharmacy, not sure why it was 0 when I received it by mail order but a-okay I will take it no questions asked. At first my increase went through my local pharmacy and there was a co-pay because I exceeded a quantity limit, I don't remember how much but not too high, I tolerated the increase and transferred to my mail-order. My question to you is most insurance companies offer mail order and this is not a controlled medication so it should be able to done that way for you. Sometimes I have to take less because of a side effect of swelling extremities and need to stay with the 300 mg. dosage just like you do with the 100 mg. dosage. But as I said already by mail order there was not a co-pay and I did expect one but much lower than using my local pharmacy. So check on this, you might be able to save some money and a trip to your pharmacy. You would think your co-pay should be $9 for 3x the amount but they are charging full price for each pill that exceeds the quantity limit on your plan. I have a Medicare Advantage plan and they have a mail order. When I had private insurance through BCBS they had a mail order. Sharon