Hi Beth 
I am so sorry that you feel isolated and lonely and I know how that feels. I feel like TN has really changed me and I never wanted to be this person and I wish I could just ‘snap’ out of it. I always feel like the people in my life don’t get it so I understand why you wouldn’t want to talk to your Facebook friends about what you’re going through. That is why this site is so great, I think. I just found ya’ll a couple of weeks ago. I was diagnosed a year ago and was doing well on meds until recently and now I am in pain mode and I feel like I am back to square one.
This seems like a great place for support and information. I found a bunch of people just like me, and it helps.
So obviously I have no good advise, all I can say is this SUCKS (for lack of a better word) but I now find comfort that there are other people going through the same thing, people that don’t think I am nuts or just being a baby
I guess all we can do is hang in there! I am crossing my fingers that you have some better days ahead
Hi Beth,
I spent the day on the couch today too. I too take the same meds and find that I am much more sleepy and snooze a lot more when my pain is more intensified. I think it is our bodies way of helping us deal with it. I woke up tonight and my head was just killing me. I took pain meds to no avail. Packed my head with ice, which helps as long as it is frozen, but as soon as my head/face starts to thaw, it starts hurting again. It is now 2:38 am and I' m still awake, wishing I was all snuggled up in bed sound asleep. You are allowed pity parties, we are all allowed our days. It's when they are every day that we need to be concerned. I'll be here if you need to vent. I have big shoulders :) Hope your having a pain free sleep!
Oh, Jodi. I’m so sorry you had such a rough night. I really hope today is better for you. I find that when I’m struggling, I feel bad for other strugglers. But when my pain is minimal, my heart breaks for them. Fortunately, I am able to sleep, even when I’m in pain. So I’m really feeling sad for you this morning. It usually takes about an hour after I wake before the pain kicks in … so I don’t yet know if it’s going to be a pain day. Fingers crossed, it’ll be a good one. And for you, too, Jodi.
Here’s to pain-free days ahead.
Beth
I know how you feel. I have been in that same place so many times. If you feel like talking call a friend or call me. Just knowing there is someone there that understands helps imeasurely. I have had ATN for about 14 yrs, but it seems to be getting worse as of late. I am 66 yr old married female living in central NY state. Been to too many doctors to count and tried all the usual meds. Still, there are days........ You may e-mail me at ■■■■■■■■■■■■■■■■ Surely hope you feel better!!!!
Beth,
I hope your better, I am so sorry that you were feeling blue. I hope you feel better today. I understand your pain and loneliness, been there. I am sure I speak for a lot of us, WE understand. You may be feeling like a mess, but your definitely not Pathetic!
Hugs & Prayers to you!
I love you all!!! This is such a difficult, isolating disease, but I truly feel like I'm part of a community because of you all. Thank you so much!!!
You know, anytime I'm struggling with the loneliness of it, I'm going to go back and read all of your wonderful messages of support. They are really helping!
Beth
We love you too!!!!!!!
No you are not alone.
Hi Beth,
So nice to hear from you. I feel bad for others anytime I see/read that they are in pain as well. It just make my heart ache. Noone should have to bare what we go through! I, under normal circumstances do well sleeping through the pain as well. But if I have slept to long during the day then I cannot go to sleep because I'm not tired enough and put that with the pain and its a lost battle. I spent all day Tuesday and Tuesday night sleeping, suffering in pain. I over did it last week and paid dearly for it.
I hope you had a wonderful day today. If you would like to e-mail me my e-mail is ■■■■■■■■■■■■■■■■■■■■■■■■■■■■. We can share stories, laugh, cry and vent. And I agree with the ladies above we love you too. I think we all have a love for each other on this site since we all are going through the same miserable shit and share our stories with total strangers. It is wonderful knowing that we have others just like us out there.
Hope for pain free days