Wishing you the best of luck with the surgery and recovery!!!
There is on the GROUPS tab
Group for UK MEMBERS. ,!
Thanks KC, I've just joined the UK group
Kc Dancer Kc said:
There is on the GROUPS tab
Group for UK MEMBERS. ,,,!
I've just called my surgeon's office for an update - it looks like everything is set for Tuesday 17th. He's even cancelled his holiday to do the operation! Can't believe it (possibly) is going to happen finally. I'm first on the list...fingers crossed.
That's great! Be sure to keep us informed.Best of luck.Im sure it's going to go perfectly!
So I finally got my MVD on Dec 17th, coming round from theatre I felt like I had been hit by a bus. I spent the night in ICU but was pretty much out of it. Then for the next two days I could hardly left my head off the pillow - but most importantly I had no TN pain. The right side of my face was (and still is) numb and my hearing is muffled on that side too, but this is such a small price to pay for no TN pain!
My husband and I travelled up to Scotland (5 hour drive) to spend Christmas and New Year with family, but on 26th Dec I had a terrible headache so went to bed early. I woke in the night feeling sick and with the headache getting worse so got my husband to get me some painkillers, when they didn't work, and I actually started throwing up, I got him to tell his family. His mum and aunty are nurses - pretty handy! They called out a GP who came and then called an ambulance. I went to the local hospital where they did a CT scan and did a lumbar puncture where they discovered I had increased white cells, so I was put me on IV antibiotics - which I had for two weeks almost continuously. They carried out further scans during the week I was in the local hospital where they found I had a csf leak but it wasn't actually 'communicating', it was contained in the head. I had another lumbar puncture a week after being admitted, as the fluid started leaking out of my wound, well, all hell broke lose. My husband was holding my hand when they were doing the lumbar puncture and he said the doctors face just dropped as the pressure was so high. They then rushed me to the Western General in Edinburgh (an hour and a half away) as this was the nearest hospital with a neuro ward. The next morning they took me to theatre to fit a lumbar drain where they started draining fluid every hour. After a few days, my wound leaked the cs fluid again so they took me to theatre where they repaired two leaks - one where it was coming out of my wound and another which was in a bone behind my ear (the mastoid), they think this could have been caused by the surgeons performing the MVD not closing the mastoid properly with wax.
So, after a total two weeks in Scottish hospitals, I am now home and resting up. I'm having good days and bad days - but most importantly no TN pain.
I have to say, the hospitals in Scotland were absolutely brilliant, and if I need further treatment we would travel back up to Edinburgh.
Apparently I have another gathering of cs fluid at the base of my skull...I feel a bit like a ticking time bomb, and I have no idea how long that stays there or how long until the risk has passed for it to leak?
Oh my, that sounds scary. I wish for you a speedy and successful recovery. My thoughts are with you.