Coping and the Difficulties

Jackie, I would be interested in learning more about that evidence you mention on a connection between chemo and delayed emergence of neuropathy or parasthesia.


Meantime, as you know,electric shock pain in your arm isn't likely connected with your TN. It's also not likely referred pain from TN, as that tends to occur in the back of the head and upper neck. Other candidates that might bear investigation are various forms of systemic neuropathy, neuritis, systemic vasculitis, Complex Regional Pain Syndrome, Reflex Sympathetic Dystrophy, and MS. One of the tests that might be used is a nerve velocity measurement down both of your arms. It's an uncomfortable procedure, but might offer a useful insight into something going on with your central nervous system.

What has your Consultant / Specialist in the NHS had to say about all of this?

Best Regards, Red


Jackie said:


Hi Red, I keep reading evidence to support my theory that the chemo I had 8 years ago is responsible for the TN which started about 18 months later.I now have shocks down my arm too, last week it felt like it was raining small shocks down my arm, other times it will be so strong as to stop me in my tracks and wince out loud so to speak. I would be interested to have your thoughts on this. Jackie

Natural going back to your original question,

MY other post got side tracked.. I have a flare up management plan that I can look to when in time of need.

We wrote them out when i did my pain management course at the local hospital. Here are Things to try when the Flare has already come: Stop !!, Stay Calm, Change positions, Take some deep breaths, Stretching exercises, Exercise, Hot shower, Relaxation/stress management, progressive muscle relaxation, mindfullness, hot pack, ice pack...

You would have other personal Early warning signs and Things to avoid which you would list for yourself.

hope this helps you and everyone

Keep a cell phone with you. Try to go with someone. If they are really bad attacks, please dont go to far. theres equipment and music available for home use. i believe red knows where to obtain it.

I had an emg done which showed irritation median nerve. PInched nerves. i have electric shocks down my arm. could an emg help with jackies diagnosis. It hurts!!! what is neuritis??

Richard A. “Red” Lawhern said:

Jackie, I would be interested in learning more about that evidence you mention on a connection between chemo and delayed emergence of neuropathy or parasthesia.


Meantime, as you know,electric shock pain in your arm isn't likely connected with your TN. It's also not likely referred pain from TN, as that tends to occur in the back of the head and upper neck. Other candidates that might bear investigation are various forms of systemic neuropathy, neuritis, systemic vasculitis, Complex Regional Pain Syndrome, Reflex Sympathetic Dystrophy, and MS. One of the tests that might be used is a nerve velocity measurement down both of your arms. It's an uncomfortable procedure, but might offer a useful insight into something going on with your central nervous system.

What has your Consultant / Specialist in the NHS had to say about all of this?

Best Regards, Red


Jackie said:


Hi Red, I keep reading evidence to support my theory that the chemo I had 8 years ago is responsible for the TN which started about 18 months later.I now have shocks down my arm too, last week it felt like it was raining small shocks down my arm, other times it will be so strong as to stop me in my tracks and wince out loud so to speak. I would be interested to have your thoughts on this. Jackie

Neuritis is a generalized inflammatory condition of the nerves. A bunch of different conditions can be underlying causes for such inflammation. One list of the factors can be found at Wikipedia: see http://en.wikipedia.org/wiki/Peripheral_neuropathy#Neuritis

Regards, Red