# Clinical Trials for TN

**URL:** <https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554>\
**Category:** General TN & GPN (Old Site)\
**Created:** [March 12, 2014, 5:46pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554 "2014-03-12T17:46:17Z")\
**Posts on this page:** 11\
**Page:** 1

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**Author:** ![Cherri](https://avatars.discourse-cdn.com/v4/letter/c/bc8723/32.png) [@Cherri](https://forum.livingwithfacialpain.org/u/Cherri)\
**Post date:** [March 12, 2014, 5:46pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/1 "2014-03-12T17:46:17Z")

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I was hunting through Google and came upon the Clinical trials page that lists all going on and have found a few for people to look into if they're interested:

Chicago area [A Nasal Applicator for the Treatment of Trigeminal Neuralgia](http://clinicaltrials.gov/ct2/show/NCT01761604?term=trigeminal&rank=9)

California (Stanford) [A Study of Amifostine for Prevention of Facial Numbness in Radiosurgery Treatment of Trigeminal Neuralgia](http://clinicaltrials.gov/ct2/show/NCT01364259?term=trigeminal&rank=10)

Chicago area [Ultrasound Guided Trigeminal Nerve Block for Typical or Atypical Facial Pain](http://clinicaltrials.gov/ct2/show/NCT02024724?term=trigeminal&rank=19)

Santa Monica California area (This one is specific and has a number of qualifications and exclusions and is not open to recruitment yet)

[Civamide Nasal Solution for Postherpetic Neuralgia of the Trigeminal Nerve](http://clinicaltrials.gov/ct2/show/NCT01886313?term=trigeminal&rank=20)

Clinical trials home page [Clinical Trials Home](http://clinicaltrials.gov/ct2/home)

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**Author:** ![HPE](https://avatars.discourse-cdn.com/v4/letter/h/76d3ee/32.png) [@HPE](https://forum.livingwithfacialpain.org/u/HPE)\
**Post date:** [March 13, 2014, 2:21pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/2 "2014-03-13T14:21:38Z")

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THANKS for sharing

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**Author:** ![peaceandquiet](https://avatars.discourse-cdn.com/v4/letter/p/b9bd4f/32.png) [@peaceandquiet](https://forum.livingwithfacialpain.org/u/peaceandquiet)\
**Post date:** [March 13, 2014, 3:47pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/3 "2014-03-13T15:47:26Z")

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Thanks for the info Cathy

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**Author:** ![golf\_nut](https://yyz1.discourse-cdn.com/flex027/user_avatar/forum.livingwithfacialpain.org/golf_nut/32/1465_2.png) [@golf\_nut](https://forum.livingwithfacialpain.org/u/golf_nut)\
**Post date:** [March 13, 2014, 4:25pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/4 "2014-03-13T16:25:09Z")

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The nasal solution trial really sounds interesting to me. It seems like my TN originates in my left nostril. When I was flying as an airline pilot most of my flying was to Asia. Often I would have sinus infections. I have no idea if there is any connection.

What is also interesting is that I have gone into remission for the third time in two years. I have been on Neurontin but now have cut back to one 300 mg pill per day. I am afraid to stop completely for fear it will come back.

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**Author:** ![Gaylon\_P\_W](https://avatars.discourse-cdn.com/v4/letter/g/ba8739/32.png) [@Gaylon\_P\_W](https://forum.livingwithfacialpain.org/u/Gaylon_P_W)\
**Post date:** [March 13, 2014, 5:57pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/5 "2014-03-13T17:57:13Z")

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Very interesting but if you live in Oklahoma there is not a lot of help. I did have the cyber knife surgery in 2013. No pain since November but I am afraid it is coming back. ???

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**Author:** ![Tree69](https://avatars.discourse-cdn.com/v4/letter/t/ea5d25/32.png) [@Tree69](https://forum.livingwithfacialpain.org/u/Tree69)\
**Post date:** [March 13, 2014, 9:50pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/6 "2014-03-13T21:50:12Z")

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I chatted with the gal on Facebook just the other day that was actually in the Chicago clinical trial for the nasal applicator. I asked her the name of the drugs they were using. “Ropivacaine and Dexemethasone” administered through an application device like a syringe with the tube on the end of it. She says it’s working.

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**Author:** ![Scared\_Angry\_gal](https://avatars.discourse-cdn.com/v4/letter/s/cc9497/32.png) [@Scared\_Angry\_gal](https://forum.livingwithfacialpain.org/u/Scared_Angry_gal)\
**Post date:** [March 14, 2014, 1:54am UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/7 "2014-03-14T01:54:01Z")

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thanks Cherri, very interesting stuff.... Elvera

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**Author:** ![Granny](https://avatars.discourse-cdn.com/v4/letter/g/e95f7d/32.png) [@Granny](https://forum.livingwithfacialpain.org/u/Granny)\
**Post date:** [March 15, 2014, 10:02am UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/8 "2014-03-15T10:02:00Z")

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Thanks for this so much! That nerve block says it is for atypical facial pain and that is me. We have a hard time finding treatment. I have been looking into this and possibly PNS which is being done, that is peripheral nerve stimulation. These treatments do not damage the nerve although I am sure there is a pink paper to sign for risk. Sharon

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**Author:** ![Granny](https://avatars.discourse-cdn.com/v4/letter/g/e95f7d/32.png) [@Granny](https://forum.livingwithfacialpain.org/u/Granny)\
**Post date:** [March 15, 2014, 10:04am UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/9 "2014-03-15T10:04:41Z")

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Wow! Thank you for posting all of these treatments. I have been very interested in finding a pain doc that does the nerve block for TN. What is very exciting for me is I am ATN and it is being done for sufferers that do not have typical TN. We are sometimes very ignored. Sharon

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**Author:** ![Gaylon\_P\_W](https://avatars.discourse-cdn.com/v4/letter/g/ba8739/32.png) [@Gaylon\_P\_W](https://forum.livingwithfacialpain.org/u/Gaylon_P_W)\
**Post date:** [March 15, 2014, 3:07pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/10 "2014-03-15T15:07:50Z")

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The treatment I had was a form of radiation   
  
  
  
Gaylon Poe Wade said:

> Very interesting but if you live in Oklahoma there is not a lot of help. I did have the cyber knife surgery in 2013. No pain since November but I am afraid it is coming back. ???

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**Author:** ![Scared\_Angry\_gal](https://avatars.discourse-cdn.com/v4/letter/s/cc9497/32.png) [@Scared\_Angry\_gal](https://forum.livingwithfacialpain.org/u/Scared_Angry_gal)\
**Post date:** [March 15, 2014, 9:10pm UTC](https://forum.livingwithfacialpain.org/t/clinical-trials-for-tn/6554/11 "2014-03-15T21:10:41Z")

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does the nerve block really work? I don't know much about it?
