Hello Natalia, you have been through the mill, so sorry, been there myself with a crippling type of back surgery. Now this, I have a suspicion your sweating may be coming from a sympathetic nerve condition or another woman has posted just because your results for TSH that they test come back normal does not mean you have a normal thyroid. I now know and she has a sight posted to go to, I will look her post up, there are 12 other substances that are not checked for a normal thyroid and there is a medication that is not synthetic that will address all of this. Don't know if they are hormonal substances that the thyroid needs. So I hate being cold, yet I still sweat, not like you, but I live in Florida, my hold head and scalp sweat, my hair is short but still gets drenched with sweat. This is one of the conditions of hyro-thyroid, the sweating that is not controlled, my internist changed my thyroid med from generic to brand name but it did not help me so I went back to the generic, expensive copay. I think this natural medication is expensive but I am going to find out what it is, if the tegretol helps me it can reduce the effect of the thyroid medication, my TSH needs to be checked.
I am glad you get to go to the hospital when it gets so bad and they treat you for this overwhelming pain, yes, just knock me out for awhile. I do know this for me, a good sleep breaks the pain cycle. I can sleep, but I sleep at a different time of the day and am an early am riser and down at 1pm, I start to fall asleep about 4pm and sleep until 1am or 2am. The time change is happening this weekend which means I will be up an hour earlier. I hate this sleep pattern, I can't join in anything in the evening, I have almost fallen asleep driving home, not safe.
Do some research on the sympathetic nervous system, I will too and let's see what we come up with. This a guess, but that is what the doctors do, they make there best guess after ruling out. I would not rule out thyroid yet. I don't know how you or even I can get tested for more than the TSH. Will look into it. You take care, I do understand now how all the meds were introduced to help you, I have been there with over 14 surgeries for lumbar, thoracic and cervical. Pain pump for awhile I needed other drugs to keep me from getting sick, one was a mood stablizer, I have been on up to 14 or 15 meds all at once. Mine have gone up to about 9 or 10. Some are because of my age, 56, blood pressure med, thyroid med, diuretic with potassium, reflux med and all the others are for pain, got 5 of those, so I know how they accumulate. Tegretol is not an easy drug to tolerate so I will know in a month if I can even take it, and if I am not getting a good response then it will get booted out, there are other drugs to try, can't take lyrica, cymbalta or celebrex or high doses of gabapentin. All cause more swelling or kidney failure so I have to be careful, even the tegretol can cause a kidney failure I have had in the past so blood work will be done this month. I will do some googling and check some posts for this thyroid thing, I haven't yet but will. I hope you can start to sleep soon, it is very important to be able to do that, your body is not rested, your pain is even more difficult to manage. God Bless You, Sharon.
Natalia said:
Thank you for your info , it makes a lot of sense to me. I also am 56 years old. I was originally diagnosed by my G.P. and given nothing. Just told to wait for an urgent MRI which would be 3 weeks. 3 months later I had no letter and was so ill I thought I was going to die-and I am not a dramatic person.. I was always brought up to grin and bear it and do not argue with the doctor but I was so bad that my husband rang my cousin.s husband who is a nuerologist at 3.a.m. He was brilliant. He was so angry that I had been left like that and said if anyone is referred to him with a diagnosis of T.N. or a possibility of it he would see them that day. the reason I am telling all this is to explain why I am on so much medication. IThe whole thing had been left for so long that I was projectile vomiting ove r the poor guy and could not speak. Had been drinkin stock thru a straw for 8 weeks.so I needed an emergency intravenous 1000 mg of phenytoin to put me out of some misery and this was reduced to 300 the next day.Thus I started with tegretol and Phenytoin. Could not tolerate tegretol though remained on it and was put on baclofen with a view to reducing tegretol and am now off tegretol completely. I am now reducing Phenytoin as they wanted to bring that down and eventually off. Next week I find out what needs to be added to the baclofen what replaces phenytoin. All of this is being monitored and I can go to hospital the minute the pain gets worse . This has been happening this week and I am going to Neurology to day,as it is time. They explain everything and having stabalised me over these months are now trying to find a more 'liveable' dosage.. I am nearly there I think. It is hard as I am still not getting sleep because of the sweating. Having ruled out thyroid last week, and given me HRT for the last 3 mths it is actually getting worse. The HRT was a long shot as I had been thru all that 10 years ago and it did not feel like this at all. Anyway they say that they will now giving something to help the sweating having ruled all these out.Here.s hoping I get some sleep soon. It is all a mess and very complicated for them as when I went for the nerve blocks they found an abcess on my jaw bone which was complicating all the symptoms for them. Sorry to ramble on. It has been a long road of mishaps and mess but I am in good hands at hospital .Wish I could say the same of my G.P and dentist who if both had done their jobs in the first place would not have left me in the state I was in.Very very angry with them.Lets hope this starting again with the meds works.Regards and hope you are feeling better yourself. .Just seen your post. My thyroid results came back normal twice, should I still push for the natural med??
Granny said:
Hello there, oh my you are a mess sweety. I think I may have something that will help you with all that neck and shoulder pain. Initially all my new pain started with my neck with just atypical facial pain. I have been getting botox injections from my neurologist for the neck and shoulder pain, of course the ATN, or TN you have won't respond unless those cervical muscles in spasm are referring some pain to your head and face and they can so it is worth a try. I have gotten some benefits, they need to be done every 3 months. Now I am type 2 ATN trying tegretol and a low dose of percocet. I read somewhere percocet works best for pain for TN or ATN, we don't want morphine or all those other pain meds that interfere with cognitive function. Tegretol is enough to swallow along with all those other drug combinations you are on. I take valium because I have a spinal cord injury, I guess it is like baclofen, so I have stopped there with the meds, tegretol, percocet, valium and a low dose of gabapentin 300 mg 3x. Still elevating slowly on the tegretol, but am getting some hours of the day of reduced pain, 2,3 maybe 4 at best.
I would change neurologists, find one that does botox, that one will be able to adjust your meds, I think you may be having side effects from the combinations of all those drugs. I am not an expert, but I am 56 and have been on everything and anything and I know how side effects from drug interactions can affect you. You need to get back to a baseline of minimal meds, introduce others slowly,
My goodness, you need to sleep, all these meds may not be allowing you to. If I get a good 7 hours of sleep, my pain is low when I wake, I just sleep at different hours of the day but I do sleep. I avoid my pain med at bedtime because I know it can interrupt deep sleep patterns. A good doc in sleep management might be able to weed out some of these drugs or adjust them, you are still in a lot of pain, so what are they really doing for you??
I hope this was helpful, let me know how you proceed, you need to change up your docs, it is something I have done at least a half dozen times to refresh my situation and evaluate all the meds.
You are not going crazy, but on this site you may or will lose your mind, this disease will drive you crazy, don't let it, keep posting, there is more help for you than you realize, you are not alone, take care of yourself, Sharon