I have introduced myself to every Oral surgeon within a 50 mile radius of where I live!!! I run into their offices without an appointment for anesthetic injections. Introduce yourself when you are not in pain, and are calm. I just returned from there just now, and I have atypical 24/7 pain. Marcaine injections reduce the pain 50% without the narcotic hangover.
Only an oral surgeon understands this condition and knows the anatomy, the rest of the ER doctors are idiots.
I am a dentist and my ER doctor friends call me while patients are there and ask me what to do with them!!!!
Hi flute cutey. I replied on my discussion page to your excellent suggestions. If you go back to your comment, I replied next. Thanks again.
flute cutey said:
I can relate to ER visits. I have been suffering from ATN (V1 branch) for 3 years now. My pain was out of control most of the time from Jan-May of last year. I made it through an MVD surgery, but I am still in pain every day. The best news is that I have not got to a 9-10 since then.
What worked for me was a little unconventional. Since the pain is on my forehead and nose, the emergency headache clinic (they have a hospital room in the office) at the University of Utah I was given an IV cocktail of Ativan, DHE (some sort of migraine medication), and an anti-nausea med. This is the only thing that would work for me. I had to go to the actual emergency room twice since it was a weekend. They never had DHE. They could bring the pain down some with some of the drugs you mentioned, but it was never as successful as DHE and Ativan.
Thanks for that info Atypical Dentist! I would never have thought to do what you suggested. Iāve long ago been to dentists, endodontists, periodontists, ā¦before my diagnosis - thinking I had a tooth problem. But I never saw an oral surgeon. And visiting them when I am āsaneā is a great idea! Iād love to try the marcaine shot instead of IV pain meds or shots. Hope my selection in my state are as cooperative as yours are!
Atypical dentist said:
I have introduced myself to every Oral surgeon within a 50 mile radius of where I live!!! I run into their offices without an appointment for anesthetic injections. Introduce yourself when you are not in pain, and are calm. I just returned from there just now, and I have atypical 24/7 pain. Marcaine injections reduce the pain 50% without the narcotic hangover.
Only an oral surgeon understands this condition and knows the anatomy, the rest of the ER doctors are idiots.
I am a dentist and my ER doctor friends call me while patients are there and ask me what to do with them!!!
I sis a shame that we get lump in with the opiate seeking addicts. My only recommendation would be to be a bit more preventive. What I am saying is maybe you can find a pain management doctor who will be able to treat these flair ups,so you will have the meds on hand to take when you are experiencing severe episodes. ER folks are a bit leery in general and often they do think the worse when it come to pain management patients .
Edster, thanks for the idea. My thinking is I need to do exactly what you suggested, after what I just experienced. I have a wonderful pain mgt Dr -nearly impossible to get an appt with due to his excellence! I see him every few months for updates and pain RX. Due to see him in late July but Iām on cancellation list to get in sooner if I can. He did write a treatment āorderā for me to take with me : to āGo to Urgent Care/ER and get a Demerol 100mg injection for an intractable pain crisis. Because that is what has worked best before.ā His written order was ignored - not even looked at by last ER Dr from hell! I WILL discuss with my pain Dr his willingness to trust me enough to give me an EMERGENCY RX for a crisis episode. Even just one dose. If not, Iāll discuss other options to avoid what just happened to me at the ER.
Edster said:
I sis a shame that we get lump in with the opiate seeking addicts. My only recommendation would be to be a bit more preventive. What I am saying is maybe you can find a pain management doctor who will be able to treat these flair ups,so you will have the meds on hand to take when you are experiencing severe episodes. ER folks are a bit leery in general and often they do think the worse when it come to pain management patients .
My family doctor had no problem supplying me with liquid morphine sulphate to take in these situations but I must admit I really don't find it very helpful. In saying that though I have never had to go to ER with the pain so it must do something.
Anan - How did you administer the liquid morphine at home? Oral? Injection? I wonder if itās the same morphine the ERs use in IV treatment of intractable pain? I know you said it doesnāt help too much with the pain, so Iām wondering if morphine is a āweakerā pain med than Dilaudid IV (which does little for my pain level at ER and lasts about 2 hours before I need my own pain meds) or Demerol shots (which are supposed to be weaker than Dilaudid IV but strangely work better for me and have a lasting positive effect). What makes me upset is that IF I WERE A DRUG SEEKER - which is the reason we pain sufferers have trouble getting adequate pain treatment, wouldnāt I WANT the STRONGER DRUG??? I want the one that works when my pain is uncontrollable and the one that lasts more than 2 hours before needing more pain meds!! Logical, right? Thereās NO LOGIC in treating real, legitimate chronic pain anymore with this āwar on pain medsā.
Hi Atypical dentist. Forgot to ask you: WHAT DO YOU DO WHEN YOU NEED DENTAL WORK - EVEN ROUTINE CLEANINGS WHICH CAN TRIGGER HORRIBLE PAIN? Suggestions would be so appreciated.
Atypical dentist said:
I have introduced myself to every Oral surgeon within a 50 mile radius of where I live!!! I run into their offices without an appointment for anesthetic injections. Introduce yourself when you are not in pain, and are calm. I just returned from there just now, and I have atypical 24/7 pain. Marcaine injections reduce the pain 50% without the narcotic hangover.
Only an oral surgeon understands this condition and knows the anatomy, the rest of the ER doctors are idiots.
I am a dentist and my ER doctor friends call me while patients are there and ask me what to do with them!!!
I have 24/7 pain that is somewhat controlled with meds. Is your pain totally out of control? If so then you need to find another neurologist-thats a long journey I know that one. Personally I would ask to be anesthetized on your trigger side that bothers you BEFORE anyone starts any procedure on you, anywhere in your mouth. Also, ask for the anesthesia 20 minutes prior to your cleaning so it in full effect!!! Then ask for them to kick up the nitrous.It won't help much for anything other than your anxiety-but what the heck-you deserve it.
DO NOT put of your dentistry as this only will lead to more horrific pain and disability long term.
Oh yes, I would ask for the dentist to block both your upper and lower jaw with anesthesia, that way all the branches will be numb. If you can believe it, I do this to myself when I am in pain. This even floors my fellow dental friends, but it works fast like nothing else!!!
Thank you Atypical dentist for the good ideas. I had NO CLUE what to do after my last cleaning triggered an extreme pain episode in my upper jaw - where Iād never had pain before. NOW the upper jaw & molars are a ānewā regular pain area a year later. I broke down and got a gentle cleaning a few weeks ago with lots of numbing gel constantly put on my gums & teeth. And I took my pain meds preventatively before the cleaning. Iām worried about ever needing ārealā dental work like a filling or worse - root canal. But because I had a horrific nightmare reaction to my 1st Nerve Block - the temple was injected as part of the series of 5-6 shots all over left face (only my cheek was a pain area BEFORE the Nerve Block shots!). The temple injection went VERY WRONG & led to a WORSE PAIN AREA than the cheek ever was!! It remains my worst pain area to this day 2 years later. That pain sends me to the ER. All my Drs say he hit & damaged the temple nerve branch. SO - they all say NEVER to let anyone near my face with a needle!! So how do I get dental anesthesia to prevent a trigger of pain WITHOUT USING ANY NEEDLES? And to answer your question, Iām in everyday pain, but with a few pain-free hours some days. But Iām fanatical about caring for my teeth. This gum pain of a year now has me kinda panicked because it WAS just a normal gentle cleaning that triggered it.
Atypical dentist said:
I have 24/7 pain that is somewhat controlled with meds. Is your pain totally out of control? If so then you need to find another neurologist-thats a long journey I know that one. Personally I would ask to be anesthetized on your trigger side that bothers you BEFORE anyone starts any procedure on you, anywhere in your mouth. Also, ask for the anesthesia 20 minutes prior to your cleaning so it in full effect!!! Then ask for them to kick up the nitrous.It wonāt help much for anything other than your anxiety-but what the heck-you deserve it.
DO NOT put of your dentistry as this only will lead to more horrific pain and disability long term.
Oh yes, I would ask for the dentist to block both your upper and lower jaw with anesthesia, that way all the branches will be numb. If you can believe it, I do this to myself when I am in pain. This even floors my fellow dental friends, but it works fast like nothing else!!!
I have a really Nice oralsurgeon treating me for last 8years. I got injections with localanastethic, marcaine. It have been the only relief I really felt helped. As you say they know the nerves and Are better than other ER drs. I had relief for a week, but the numbibg was for 24-48h. I have also got injections in my TMJ joint, but this wasnt that suscessfull on longtime as the jointcapsule is destroyed. Caused by the 100dreds og injections I have got.