# Uncategorized Older than 1 year **URL:** https://forum.livingwithfacialpain.org/c/uncategorized/1.md [Latest](https://forum.livingwithfacialpain.org/latest.md) · [Categories](https://forum.livingwithfacialpain.org/categories.md) · [Tags](https://forum.livingwithfacialpain.org/tags.md) --- ## [Does anyone have swelling with TN or GN?](https://forum.livingwithfacialpain.org/t/does-anyone-have-swelling-with-tn-or-gn/7927)
**Author:** [@virginia\_girl](https://forum.livingwithfacialpain.org/u/virginia_girl)\ **Replies:** 19\ **Last updated:** [September 13, 2022, 7:52pm UTC](https://forum.livingwithfacialpain.org/t/does-anyone-have-swelling-with-tn-or-gn/7927 "2022-09-13T19:52:23Z")
I have been on this site for a while and I first want to thank all of you that have helped me through many crisis modes and helped me gain an understanding about both TN and GN. I am taking many medicines that seem to ke… --- ## [At my breaking point with no one around who understands](https://forum.livingwithfacialpain.org/t/at-my-breaking-point-with-no-one-around-who-understands/8047)
**Author:** [@Katie\_McN](https://forum.livingwithfacialpain.org/u/Katie_McN)\ **Replies:** 148\ **Last updated:** [July 27, 2022, 5:01pm UTC](https://forum.livingwithfacialpain.org/t/at-my-breaking-point-with-no-one-around-who-understands/8047 "2022-07-27T17:01:12Z")
Ok so I have never done this before so please bear with me I am having a bad flare n the pain has been nonstop and a lot of times it burns like acid in my face and ear if I touch my face it feels like I am burning my imp… --- ## [Reducing pain by controlling diet?](https://forum.livingwithfacialpain.org/t/reducing-pain-by-controlling-diet/6057)
**Author:** [@Sri](https://forum.livingwithfacialpain.org/u/Sri)\ **Replies:** 26\ **Last updated:** [October 23, 2020, 8:19pm UTC](https://forum.livingwithfacialpain.org/t/reducing-pain-by-controlling-diet/6057 "2020-10-23T20:19:27Z")
I've read quite a few discussions, blog posts and articles about people with TN controlling their pain attacks through diets. I've only had pain attacks since October and can very much be considered a TN "newbie". But fr… --- ## [Homeopathic remedies for TN?](https://forum.livingwithfacialpain.org/t/homeopathic-remedies-for-tn/1915)
**Author:** [@ArtsGuy](https://forum.livingwithfacialpain.org/u/ArtsGuy)\ **Replies:** 13\ **Last updated:** [October 21, 2020, 3:28am UTC](https://forum.livingwithfacialpain.org/t/homeopathic-remedies-for-tn/1915 "2020-10-21T03:28:27Z")
Hey there -- Just wondering if anyone has tried any homeopathic remedies to use either in conjunction with, or as an alternative to, traditional drugs (I am currently taking Gabapentin). Would appreciate any insights o… --- ## [It Keeps Changing](https://forum.livingwithfacialpain.org/t/it-keeps-changing/7974)
**Author:** [@Genevieve](https://forum.livingwithfacialpain.org/u/Genevieve)\ **Replies:** 0\ **Last updated:** [May 7, 2015, 6:46pm UTC](https://forum.livingwithfacialpain.org/t/it-keeps-changing/7974 "2015-05-07T18:46:22Z")
I don't know what's going on, but my pain keeps changing and it's getting worse. It was so bad last night even after taking 1.5 Norco that I went to the ER. The doctor there gave me 10mg of oxycodone (without Tylenol), t… --- ## [MVD recovery](https://forum.livingwithfacialpain.org/t/mvd-recovery/787)
**Author:** [@Anna\_Guarco\_Cheney](https://forum.livingwithfacialpain.org/u/Anna_Guarco_Cheney)\ **Replies:** 25\ **Last updated:** [May 25, 2020, 9:24am UTC](https://forum.livingwithfacialpain.org/t/mvd-recovery/787 "2020-05-25T09:24:56Z")
Hello, I'm considering an MVD for both TN and hemifacial spasm. I want to know what people's recovery experiences have been like... what to expect, what restrictions there are and for how long, etc. I'm a mother of a … --- ## [Total Left Side Numbness](https://forum.livingwithfacialpain.org/t/total-left-side-numbness/4061)
**Author:** [@Christine\_P](https://forum.livingwithfacialpain.org/u/Christine_P)\ **Replies:** 23\ **Last updated:** [March 26, 2020, 11:57pm UTC](https://forum.livingwithfacialpain.org/t/total-left-side-numbness/4061 "2020-03-26T23:57:34Z")
Good evening, all. I have posted this information before, but am reaching-out again, as I want to know if what I am experiencing is happening with other TN patients and those who have received GK and/or CyberKnife. I wo… --- ## [Cyberknife Feedback](https://forum.livingwithfacialpain.org/t/cyberknife-feedback/4681)
**Author:** [@Angie2](https://forum.livingwithfacialpain.org/u/Angie2)\ **Replies:** 2\ **Last updated:** [March 26, 2020, 11:49pm UTC](https://forum.livingwithfacialpain.org/t/cyberknife-feedback/4681 "2020-03-26T23:49:26Z")
I am a new member and think this site is absolutely wonderful. You are all a great group of people. I am wondering if I can get feedback from those who have had the Cyberknife procedure. I had mine in October 2012 and i… --- ## [Has any one had cyberknife surgery for TN?](https://forum.livingwithfacialpain.org/t/has-any-one-had-cyberknife-surgery-for-tn/1538)
**Author:** [@cj7153](https://forum.livingwithfacialpain.org/u/cj7153)\ **Replies:** 5\ **Last updated:** [March 26, 2020, 11:47pm UTC](https://forum.livingwithfacialpain.org/t/has-any-one-had-cyberknife-surgery-for-tn/1538 "2020-03-26T23:47:45Z")
I am in the process of being evaluated for it but I am concerned about facial numbness. --- ## [Anyone had THIS happen?](https://forum.livingwithfacialpain.org/t/anyone-had-this-happen/5274)
**Author:** [@Sleopard41](https://forum.livingwithfacialpain.org/u/Sleopard41)\ **Replies:** 6\ **Last updated:** [March 6, 2020, 11:28pm UTC](https://forum.livingwithfacialpain.org/t/anyone-had-this-happen/5274 "2020-03-06T23:28:56Z")
I have had TN and fibro for many years...my TN does occasionally make my face (whichever side is effected swell a bit at times). Anyhow, I woke up this morning with a HUGE knot basically up under my cheekbone...swollen f… --- ## [Did Gamma Knife work for you?](https://forum.livingwithfacialpain.org/t/did-gamma-knife-work-for-you/1654)
**Author:** [@Maria](https://forum.livingwithfacialpain.org/u/Maria)\ **Replies:** 15\ **Last updated:** [February 9, 2020, 12:34am UTC](https://forum.livingwithfacialpain.org/t/did-gamma-knife-work-for-you/1654 "2020-02-09T00:34:34Z")
Hi all. I had Gamma Knife about 6 months ago and it appears to not have worked. I have no numbness and my TN only seemed to have gotten worse after the Radiosurgery. Anyone else have a similar story regarding Gamma Knif… --- ## [Nose Pain](https://forum.livingwithfacialpain.org/t/nose-pain/5271)
**Author:** [@Henry](https://forum.livingwithfacialpain.org/u/Henry)\ **Replies:** 24\ **Last updated:** [January 23, 2020, 10:46pm UTC](https://forum.livingwithfacialpain.org/t/nose-pain/5271 "2020-01-23T22:46:17Z")
I've had atypical TN in my jaw for thirteen years and been treated with a whole assortment of medicines and procedures. It was a result of dental work. Last December, I had my last (top front) teeth pulled and could tell… --- ## [Doctors ATN PLEASE HELP ME](https://forum.livingwithfacialpain.org/t/doctors-atn-please-help-me/7964)
**Author:** [@anxious](https://forum.livingwithfacialpain.org/u/anxious)\ **Replies:** 8\ **Last updated:** [January 9, 2020, 10:25pm UTC](https://forum.livingwithfacialpain.org/t/doctors-atn-please-help-me/7964 "2020-01-09T22:25:51Z")
For the last six months I've been battling vertigo.... I got a diagnosis for it and when I was getting over it I am hit with a burning pain on the left side of my face. the burning sensation gets slightly uncomfortable,… --- ## [Acupuncture](https://forum.livingwithfacialpain.org/t/acupuncture/8095)
**Author:** [@OSUBUCKS1](https://forum.livingwithfacialpain.org/u/OSUBUCKS1)\ **Replies:** 4\ **Last updated:** [July 31, 2019, 2:50pm UTC](https://forum.livingwithfacialpain.org/t/acupuncture/8095 "2019-07-31T14:50:24Z")
Has anyone had luck with acupuncture to relieve TN pain? --- ## [Newly Diagnosed](https://forum.livingwithfacialpain.org/t/newly-diagnosed/7520)
**Author:** [@Megan4](https://forum.livingwithfacialpain.org/u/Megan4)\ **Replies:** 20\ **Last updated:** [March 29, 2019, 2:52am UTC](https://forum.livingwithfacialpain.org/t/newly-diagnosed/7520 "2019-03-29T02:52:28Z")
I'm newly diagnosed with TN type 2 and it's debilitating and frustrating with the unrelenting burning. I've considered suicide more than once and keep wondering how long I can live with the pain before trying to end it.… --- ## [My first experiences (and last hope,) with the PainShield device](https://forum.livingwithfacialpain.org/t/my-first-experiences-and-last-hope-with-the-painshield-device/4752)
**Author:** [@WaWa](https://forum.livingwithfacialpain.org/u/WaWa)\ **Replies:** 16\ **Last updated:** [March 26, 2019, 5:32am UTC](https://forum.livingwithfacialpain.org/t/my-first-experiences-and-last-hope-with-the-painshield-device/4752 "2019-03-26T05:32:05Z")
Daer All, I have not been active on the site since a while, but now I want to report to you on my findings with the PainShield device that I am using now for ten nights in a row. In my desperation to get relief and i… --- ## [Arjuna would like some input from you. Yes, YOU!](https://forum.livingwithfacialpain.org/t/arjuna-would-like-some-input-from-you-yes-you/15321)
**Author:** [@ModSupport](https://forum.livingwithfacialpain.org/u/ModSupport)\ **Replies:** 7\ **Last updated:** [March 4, 2019, 6:56pm UTC](https://forum.livingwithfacialpain.org/t/arjuna-would-like-some-input-from-you-yes-you/15321 "2019-03-04T18:56:05Z")
Hello everyone It’s not often that I get to introduce a very special member of the Ben’s Friends team with a unique and interesting project . Arjuna is one of our interns, a university student volunteer who is hoping to… --- ## [Arjuna would like to know what you think. Yes, YOU!](https://forum.livingwithfacialpain.org/t/arjuna-would-like-to-know-what-you-think-yes-you/15322)
**Author:** [@ModSupport](https://forum.livingwithfacialpain.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [March 2, 2019, 2:40am UTC](https://forum.livingwithfacialpain.org/t/arjuna-would-like-to-know-what-you-think-yes-you/15322 "2019-03-02T02:40:17Z")
Hello everyone It’s not often that I get to introduce a very special member of the Ben’s Friends team with a unique and interesting project . Arjuna is one of our interns, a university student volunteer who is hoping to… --- ## [Amitryptiline Side Effects](https://forum.livingwithfacialpain.org/t/amitryptiline-side-effects/8011)
**Author:** [@NamK](https://forum.livingwithfacialpain.org/u/NamK)\ **Replies:** 3\ **Last updated:** [May 24, 2015, 3:57pm UTC](https://forum.livingwithfacialpain.org/t/amitryptiline-side-effects/8011 "2015-05-24T15:57:59Z")
Is anyone currently using amitryptiline? I've been using it and it's been working for the most part but I seem to be gaining weight. My neurologist said that is a side effect of the medicine. Has anyone had success with … --- ## [Question of POT (marijuana)](https://forum.livingwithfacialpain.org/t/question-of-pot-marijuana/7699)
**Author:** [@wheels4legs](https://forum.livingwithfacialpain.org/u/wheels4legs)\ **Replies:** 24\ **Last updated:** [January 13, 2019, 9:24am UTC](https://forum.livingwithfacialpain.org/t/question-of-pot-marijuana/7699 "2019-01-13T09:24:23Z")
Has anyone tired marijuana, medical of course, as a relief for TN pain? If so did it work or what did you find out about it? My friend brought it up and I didn't know the answer to it. Thanks for any help you can give. --- ## [A holiday message from us to you](https://forum.livingwithfacialpain.org/t/a-holiday-message-from-us-to-you/15193)
**Author:** [@ModSupport](https://forum.livingwithfacialpain.org/u/ModSupport)\ **Replies:** 0\ **Last updated:** [December 24, 2018, 3:23am UTC](https://forum.livingwithfacialpain.org/t/a-holiday-message-from-us-to-you/15193 "2018-12-24T03:23:23Z")
All of us here at Ben’s Friends would like to wish you and yours a very happy holiday season. We also know that this can be a difficult time of the year, as many of our members are facing tough challenges and perhaps suf… --- ## [Did I make a mistake with Radiofrequency Ablation?](https://forum.livingwithfacialpain.org/t/did-i-make-a-mistake-with-radiofrequency-ablation/3237)
**Author:** [@KirkVR](https://forum.livingwithfacialpain.org/u/KirkVR)\ **Replies:** 5\ **Last updated:** [December 13, 2018, 1:54am UTC](https://forum.livingwithfacialpain.org/t/did-i-make-a-mistake-with-radiofrequency-ablation/3237 "2018-12-13T01:54:31Z")
I had the Radiofrequency Ablation procedure a few years ago and have been pain free since. Did I make a mistake? Reading through the discussions here it appears that some people are very much against nerve damaging proce… --- ## [Negative FIESTA MRI, should I have an MVD?](https://forum.livingwithfacialpain.org/t/negative-fiesta-mri-should-i-have-an-mvd/3646)
**Author:** [@mollycule](https://forum.livingwithfacialpain.org/u/mollycule)\ **Replies:** 5\ **Last updated:** [July 9, 2018, 12:24am UTC](https://forum.livingwithfacialpain.org/t/negative-fiesta-mri-should-i-have-an-mvd/3646 "2018-07-09T00:24:42Z")
My FIESTA MRI was negative, no compression shown. Should I have an MVD anyway? Is it possible for the neurosurgeon to crack open your brain and find something, even though the MRI showed nothing? I am also wondering if m… --- ## [Ketamine infusions?](https://forum.livingwithfacialpain.org/t/ketamine-infusions/2479)
**Author:** [@Nathan\_23](https://forum.livingwithfacialpain.org/u/Nathan_23)\ **Replies:** 26\ **Last updated:** [July 4, 2018, 2:22am UTC](https://forum.livingwithfacialpain.org/t/ketamine-infusions/2479 "2018-07-04T02:22:54Z")
I just joined the site a few days ago, but reading through the forums and all of the information that is on the site is awesome! I e-mailed "Red" about some of the procedures that I have had completed, wondering if anyo… --- ## [Botox Injections - TN2](https://forum.livingwithfacialpain.org/t/botox-injections-tn2/5632)
**Author:** [@Jturn49](https://forum.livingwithfacialpain.org/u/Jturn49)\ **Replies:** 5\ **Last updated:** [March 18, 2018, 11:18pm UTC](https://forum.livingwithfacialpain.org/t/botox-injections-tn2/5632 "2018-03-18T23:18:27Z")
Has anyone tried Botox Injections for TN2 pain? My pain started about 18 months ago when a dentist tried to replace one of my lower right molars with a dental implant. Not sure what went wrong with the procedure but i've… --- ## [Rhizomtomy](https://forum.livingwithfacialpain.org/t/rhizomtomy/5152)
**Author:** [@Lori\_Lefty](https://forum.livingwithfacialpain.org/u/Lori_Lefty)\ **Replies:** 19\ **Last updated:** [January 25, 2018, 8:19am UTC](https://forum.livingwithfacialpain.org/t/rhizomtomy/5152 "2018-01-25T08:19:23Z")
I'm going back to Johns Hopkins for a rhizotomey (sp) next Monday. Can any of you tell me what to expect following the procedure? It's only about a 50/50 chance it will help but at this point, that is all we have left … --- ## [Upper Cervical Chiropractic for atypical trigeminal noralgia](https://forum.livingwithfacialpain.org/t/upper-cervical-chiropractic-for-atypical-trigeminal-noralgia/1690)
**Author:** [@tomey](https://forum.livingwithfacialpain.org/u/tomey)\ **Replies:** 4\ **Last updated:** [December 7, 2017, 1:27am UTC](https://forum.livingwithfacialpain.org/t/upper-cervical-chiropractic-for-atypical-trigeminal-noralgia/1690 "2017-12-07T01:27:38Z")
i heard good things about it for example : http://www.youtube.com/watch?v=TnKF8MwZ9YU did someone tried it ?? it is not a regular Chiropractic ! --- ## [Anyone ever have a third MVD?](https://forum.livingwithfacialpain.org/t/anyone-ever-have-a-third-mvd/5858)
**Author:** [@Not\_Again](https://forum.livingwithfacialpain.org/u/Not_Again)\ **Replies:** 28\ **Last updated:** [June 18, 2017, 9:08pm UTC](https://forum.livingwithfacialpain.org/t/anyone-ever-have-a-third-mvd/5858 "2017-06-18T21:08:59Z")
I have had 2 MVDs. The first in '98 and the second in '06. Pain came back in '07 and then I had a failed stereotactic procedure. Have struggled with various meds, bad side effects and inadequate pain relief since then. C… --- ## [Partial Sensory Rhizotomy](https://forum.livingwithfacialpain.org/t/partial-sensory-rhizotomy/7973)
**Author:** [@rblair](https://forum.livingwithfacialpain.org/u/rblair)\ **Replies:** 46\ **Last updated:** [May 14, 2017, 7:21am UTC](https://forum.livingwithfacialpain.org/t/partial-sensory-rhizotomy/7973 "2017-05-14T07:21:34Z")
I am undergoing this operation on 5/29. It will be the third operative attempt to end my pain on the left side. Has anyone had this done? Looking for more experiences. I have talked to a few, and it's a mixed bag. My sur… --- ## [Namenda for Pain Management](https://forum.livingwithfacialpain.org/t/namenda-for-pain-management/6298)
**Author:** [@richard\_s](https://forum.livingwithfacialpain.org/u/richard_s)\ **Replies:** 20\ **Last updated:** [April 24, 2017, 8:46am UTC](https://forum.livingwithfacialpain.org/t/namenda-for-pain-management/6298 "2017-04-24T08:46:07Z")
Has anyone been prescribed Namenda for TN pain? I have a Titration Pak sitting on my night stand but have not made the final decision. I hate the idea of yet another medication to make me unproductive and still be in pa… [Next page](https://forum.livingwithfacialpain.org/c/uncategorized/1.md?page=1)