# TN Discussion **URL:** https://forum.livingwithfacialpain.org/c/general/tn/23.md?page=1 [Latest](https://forum.livingwithfacialpain.org/latest.md) · [Categories](https://forum.livingwithfacialpain.org/categories.md) · [Tags](https://forum.livingwithfacialpain.org/tags.md) **Page:** 2 --- ## [Can I gradually eliminate my Gabapentin dose altogether if there is no pain?](https://forum.livingwithfacialpain.org/t/can-i-gradually-eliminate-my-gabapentin-dose-altogether-if-there-is-no-pain/12924)
**Author:** [@Unbroken](https://forum.livingwithfacialpain.org/u/Unbroken)\ **Replies:** 8\ **Last updated:** [May 20, 2021, 7:39pm UTC](https://forum.livingwithfacialpain.org/t/can-i-gradually-eliminate-my-gabapentin-dose-altogether-if-there-is-no-pain/12924 "2021-05-20T19:39:32Z")
I have gradually reduced Gabapentin dosage over 2 years from 1800 mg/day to 200 mg/day that I take at present? I want to confirm if it is safe to eliminate it altogether as I received some arguments against it. Thanks … --- ## [Finally diagnosed but now need neurologist ... also, yikes, dental cleaning?](https://forum.livingwithfacialpain.org/t/finally-diagnosed-but-now-need-neurologist-also-yikes-dental-cleaning/17736)
**Author:** [@RecipeForDisaster](https://forum.livingwithfacialpain.org/u/RecipeForDisaster)\ **Replies:** 11\ **Last updated:** [April 6, 2021, 11:39am UTC](https://forum.livingwithfacialpain.org/t/finally-diagnosed-but-now-need-neurologist-also-yikes-dental-cleaning/17736 "2021-04-06T11:39:28Z")
I went to a wonderful FPA recommended neurosurgeon. I didn’t know he didn’t do anything BUT surgery. At least I officially have TN now. I may do gamma knife at some point, but I’m managing on carbamazepine 400mg twice a … --- ## [Support for family/friends](https://forum.livingwithfacialpain.org/t/support-for-family-friends/17617)
**Author:** [@Sean1](https://forum.livingwithfacialpain.org/u/Sean1)\ **Replies:** 3\ **Last updated:** [February 8, 2021, 1:00am UTC](https://forum.livingwithfacialpain.org/t/support-for-family-friends/17617 "2021-02-08T01:00:06Z")
For those who have friends, family, or other loved ones looking for how best to support those with TN, and also one another, a helpful resource is “Trigeminal Neuralgia Caretakers” group on facebook. As someone who is de… --- ## [TN combined with MS?](https://forum.livingwithfacialpain.org/t/tn-combined-with-ms/13183)
**Author:** [@lili777](https://forum.livingwithfacialpain.org/u/lili777)\ **Replies:** 20\ **Last updated:** [September 6, 2020, 11:21am UTC](https://forum.livingwithfacialpain.org/t/tn-combined-with-ms/13183 "2020-09-06T11:21:32Z")
Hi everyone, I had an MVD on 12 December 2016, which was very successful for my type 1 TN. However, I am still left with constant pain in my temple area, underneath my eye and in my upper teeth. I also have stabbing pa… --- ## [Pain suddenly changed, am I the only one with this?](https://forum.livingwithfacialpain.org/t/pain-suddenly-changed-am-i-the-only-one-with-this/17325)
**Author:** [@Meerkat](https://forum.livingwithfacialpain.org/u/Meerkat)\ **Replies:** 3\ **Last updated:** [August 14, 2020, 7:16pm UTC](https://forum.livingwithfacialpain.org/t/pain-suddenly-changed-am-i-the-only-one-with-this/17325 "2020-08-14T19:16:42Z")
Alright, this is a story. So for five years, I’ve been getting both burning/tingling and occasional stabbing/throbbing/tearing pain. All six branches are affected, mostly the right maxillary and mandibular nerves. Excep… --- ## [TN MVD Surgery Recovery Return to Work](https://forum.livingwithfacialpain.org/t/tn-mvd-surgery-recovery-return-to-work/16114)
**Author:** [@jenezrow](https://forum.livingwithfacialpain.org/u/jenezrow)\ **Replies:** 13\ **Last updated:** [January 7, 2020, 4:09pm UTC](https://forum.livingwithfacialpain.org/t/tn-mvd-surgery-recovery-return-to-work/16114 "2020-01-07T16:09:01Z")
Hi everyone. I’m new to the site and a TN sufferer for 2 years. After trying medications which either don’t help or I cannot tolerate, I am going to be having MVD surgery in about 3 weeks. I am curious to hear about … --- ## [Neurosurgeon MVD Specialist for TN](https://forum.livingwithfacialpain.org/t/neurosurgeon-mvd-specialist-for-tn/16043)
**Author:** [@Snowboot](https://forum.livingwithfacialpain.org/u/Snowboot)\ **Replies:** 11\ **Last updated:** [October 27, 2019, 11:40am UTC](https://forum.livingwithfacialpain.org/t/neurosurgeon-mvd-specialist-for-tn/16043 "2019-10-27T11:40:28Z")
How to locate the best Neurosurgeon specialist on Microvascular Decompression (MVD) operation for Trigeminal Neuralgia (TN) in the province of Ontario, Canada ? and how to get connected with him? --- ## [Sadly missing category (TN type 2 from start) in "The International Classification of Headache Disorders 3rd edition (2018)"](https://forum.livingwithfacialpain.org/t/sadly-missing-category-tn-type-2-from-start-in-the-international-classification-of-headache-disorders-3rd-edition-2018/15191)
**Author:** [@European\_sufferer](https://forum.livingwithfacialpain.org/u/European_sufferer)\ **Replies:** 20\ **Last updated:** [May 2, 2019, 4:45am UTC](https://forum.livingwithfacialpain.org/t/sadly-missing-category-tn-type-2-from-start-in-the-international-classification-of-headache-disorders-3rd-edition-2018/15191 "2019-05-02T04:45:44Z")
Dear all, I went through “The International Classification of Headache Disorders 3rd edition” with a fine comb and saw that the description of the following condition is completely missing: TN type 2 that always was typ… --- ## [Just Getting Started](https://forum.livingwithfacialpain.org/t/just-getting-started/15404)
**Author:** [@dmlonghorn](https://forum.livingwithfacialpain.org/u/dmlonghorn)\ **Replies:** 9\ **Last updated:** [May 1, 2019, 11:09pm UTC](https://forum.livingwithfacialpain.org/t/just-getting-started/15404 "2019-05-01T23:09:21Z")
Hey Everyone, I was just diagnosed. I also have Cluster Headaches, so I’m familiar with how helpful sites such as this can be, even life-saving. So here I am :slight\_smile: My jaw/cheek area is not as tender or as swol… --- ## [Has anyone applied for SSDI](https://forum.livingwithfacialpain.org/t/has-anyone-applied-for-ssdi/15408)
**Author:** [@Mitzi](https://forum.livingwithfacialpain.org/u/Mitzi)\ **Replies:** 5\ **Last updated:** [April 26, 2019, 4:32pm UTC](https://forum.livingwithfacialpain.org/t/has-anyone-applied-for-ssdi/15408 "2019-04-26T16:32:20Z")
There is no way I can work with Trigeminal Neuralgia, I can’t talk, I can’t drive due to medication, I can’t hardly eat without pain. Has anybody applied for SSDI and been able to get help? Thanks --- ## [What caused remission this time!](https://forum.livingwithfacialpain.org/t/what-caused-remission-this-time/15412)
**Author:** [@ShowMe\_from\_MO](https://forum.livingwithfacialpain.org/u/ShowMe_from_MO)\ **Replies:** 8\ **Last updated:** [April 18, 2019, 10:41pm UTC](https://forum.livingwithfacialpain.org/t/what-caused-remission-this-time/15412 "2019-04-18T22:41:41Z")
I had some unexpected surgery, in a body part not involving the head, for which I was fully anesthetized. I don’t know offhand the type or types of anesthesia given. I just want to say that as I have recovered from the s… --- ## [Kaiser neurosurgy](https://forum.livingwithfacialpain.org/t/kaiser-neurosurgy/15034)
**Author:** [@ekay](https://forum.livingwithfacialpain.org/u/ekay)\ **Replies:** 7\ **Last updated:** [April 12, 2019, 6:59am UTC](https://forum.livingwithfacialpain.org/t/kaiser-neurosurgy/15034 "2019-04-12T06:59:26Z")
Has anyone here had MVD or other facial pain procedure from a Kaiser surgeon in the SF Bay area. If so, your experience and recommendation please. Also has anyone wanted to see an outside of Kaiser surgeon and were you… --- ## [Is it just me, or do you experience these too?](https://forum.livingwithfacialpain.org/t/is-it-just-me-or-do-you-experience-these-too/15397)
**Author:** [@kudasai](https://forum.livingwithfacialpain.org/u/kudasai)\ **Replies:** 10\ **Last updated:** [April 5, 2019, 1:06pm UTC](https://forum.livingwithfacialpain.org/t/is-it-just-me-or-do-you-experience-these-too/15397 "2019-04-05T13:06:27Z")
Hello friends, Simple questions. I have been in this TN “game” 10 years now, and I am noticing these things more now… !. Is anyone’s pain worse when you first stand up? 2. When under stress, pain is worse. One of … --- ## [Localized spot of pain on top of head aggravated by any mental effort](https://forum.livingwithfacialpain.org/t/localized-spot-of-pain-on-top-of-head-aggravated-by-any-mental-effort/15007)
**Author:** [@djmano](https://forum.livingwithfacialpain.org/u/djmano)\ **Replies:** 5\ **Last updated:** [March 27, 2019, 4:48am UTC](https://forum.livingwithfacialpain.org/t/localized-spot-of-pain-on-top-of-head-aggravated-by-any-mental-effort/15007 "2019-03-27T04:48:55Z")
I believe I have some form of atypical trigeminal neuralgia, but only of the V1 opthalmic division. There is one small, circular spot of pain on the top right side of my head that is dormant when I first wake up, but as… --- ## [TN and hep C a bad mix](https://forum.livingwithfacialpain.org/t/tn-and-hep-c-a-bad-mix/14560)
**Author:** [@walleye](https://forum.livingwithfacialpain.org/u/walleye)\ **Replies:** 11\ **Last updated:** [February 9, 2019, 5:46pm UTC](https://forum.livingwithfacialpain.org/t/tn-and-hep-c-a-bad-mix/14560 "2019-02-09T17:46:42Z")
I have had TN for about 4 yrs and I was able to control the pain some with Tegretal and Gabapentin. I was recently diagnosed with Hep C and sent to a GI Dr. she prescribed Zeptair and I was told I had wean off Tegretal t… --- ## [No longer in remission](https://forum.livingwithfacialpain.org/t/no-longer-in-remission/15225)
**Author:** [@MP15](https://forum.livingwithfacialpain.org/u/MP15)\ **Replies:** 4\ **Last updated:** [January 14, 2019, 7:51am UTC](https://forum.livingwithfacialpain.org/t/no-longer-in-remission/15225 "2019-01-14T07:51:13Z")
Hi everyone, I have suffered from sinus infections and sinuses, allergies etc including bronchitis and pneumonia. In Jan 2010, I had sinus surgery, I’ve had some dental work, root canals, one bridge and cavity fillings. … --- ## [Pure CBD Oil](https://forum.livingwithfacialpain.org/t/pure-cbd-oil/15136)
**Author:** [@givingup](https://forum.livingwithfacialpain.org/u/givingup)\ **Replies:** 8\ **Last updated:** [January 14, 2019, 7:11am UTC](https://forum.livingwithfacialpain.org/t/pure-cbd-oil/15136 "2019-01-14T07:11:12Z")
so being in the UK you can only get cbd, only a few people can get it with the thc from a specialist. I have type1 and type2 on both sides meds are failing. I’d like to ask before i spend, those who have tried the pure… --- ## [Alternative Treatment for ATN (Type 2 TN)](https://forum.livingwithfacialpain.org/t/alternative-treatment-for-atn-type-2-tn/15158)
**Author:** [@HMB](https://forum.livingwithfacialpain.org/u/HMB)\ **Replies:** 8\ **Last updated:** [December 9, 2018, 7:31pm UTC](https://forum.livingwithfacialpain.org/t/alternative-treatment-for-atn-type-2-tn/15158 "2018-12-09T19:31:21Z")
I have not posted any comments for a long time. I was diagnosed with ATN in January 2010. Like most of my fellow sufferers, I have used every drug possible to relieve the excruciating , unpredictable pain for the past al… --- ## [Spontaneous Earache Symptoms](https://forum.livingwithfacialpain.org/t/spontaneous-earache-symptoms/14875)
**Author:** [@EmGeorge](https://forum.livingwithfacialpain.org/u/EmGeorge)\ **Replies:** 12\ **Last updated:** [September 20, 2018, 3:42pm UTC](https://forum.livingwithfacialpain.org/t/spontaneous-earache-symptoms/14875 "2018-09-20T15:42:46Z")
Hello I have TMJ and recently diagnosed with TN too from multiple extractions ( I have no molars left) and having novacaine needles hitting my interior alveolar nerve over and over again over the years, i ve been in ago… --- ## [Vinpat](https://forum.livingwithfacialpain.org/t/vinpat/15033)
**Author:** [@ekay](https://forum.livingwithfacialpain.org/u/ekay)\ **Replies:** 0\ **Last updated:** [August 27, 2018, 1:48am UTC](https://forum.livingwithfacialpain.org/t/vinpat/15033 "2018-08-27T01:48:21Z")
Anyone on Vimpat for TN? If so anyone have increased joint pain? --- ## [ATN question](https://forum.livingwithfacialpain.org/t/atn-question/13203)
**Author:** [@Camia](https://forum.livingwithfacialpain.org/u/Camia)\ **Replies:** 15\ **Last updated:** [June 11, 2018, 7:05am UTC](https://forum.livingwithfacialpain.org/t/atn-question/13203 "2018-06-11T07:05:37Z")
Hi all I have been diagnosed with type 2 and more recently type 1 tn. Mostly on left but I've been told, could now be bilateral. I've been to facial pain symposiums,yet still feel fairly ignorant sometimes. Since the com… --- ## [Neurodegenerative disease](https://forum.livingwithfacialpain.org/t/neurodegenerative-disease/14795)
**Author:** [@Siminative](https://forum.livingwithfacialpain.org/u/Siminative)\ **Replies:** 3\ **Last updated:** [June 5, 2018, 7:57pm UTC](https://forum.livingwithfacialpain.org/t/neurodegenerative-disease/14795 "2018-06-05T19:57:09Z")
I’m watching Dateline and it’s talking about THCA and CBD oil helping nuerodegerative disease. Is TN included in that? Thanks Nancy --- ## [Can you touch your face?](https://forum.livingwithfacialpain.org/t/can-you-touch-your-face/14726)
**Author:** [@galimatias](https://forum.livingwithfacialpain.org/u/galimatias)\ **Replies:** 23\ **Last updated:** [May 30, 2018, 2:50am UTC](https://forum.livingwithfacialpain.org/t/can-you-touch-your-face/14726 "2018-05-30T02:50:28Z")
I was just watching some videos where people taped their TN attacks and their experiences and triggers. They published it for their doctors, to help educate and in a couple cases to ask for the right to use medical marij… --- ## [Recently diagnosed with Trigeminal Neuralgia](https://forum.livingwithfacialpain.org/t/recently-diagnosed-with-trigeminal-neuralgia/14813)
**Author:** [@Tthompson](https://forum.livingwithfacialpain.org/u/Tthompson)\ **Replies:** 6\ **Last updated:** [May 30, 2018, 1:43am UTC](https://forum.livingwithfacialpain.org/t/recently-diagnosed-with-trigeminal-neuralgia/14813 "2018-05-30T01:43:15Z")
Hello, I am looking for help. I was recently diagnosed by an ER doc. I woke up about two weeks ago now with my face hurting, a burning sensation on the right side, my ear hurting and spit out a blood clot while brushing … --- ## [Feel like nerves are going haywire](https://forum.livingwithfacialpain.org/t/feel-like-nerves-are-going-haywire/14771)
**Author:** [@Karen\_B](https://forum.livingwithfacialpain.org/u/Karen_B)\ **Replies:** 4\ **Last updated:** [May 12, 2018, 7:27pm UTC](https://forum.livingwithfacialpain.org/t/feel-like-nerves-are-going-haywire/14771 "2018-05-12T19:27:17Z")
I’ve had TN for about 25 years. My episodes of pain are few and far between for the most part. Several days ago, I developed a terrible headache at the back of my head and neck. Stress maybe? Then jolts of nerve pain… --- ## [What's up with this site](https://forum.livingwithfacialpain.org/t/whats-up-with-this-site/12584)
**Author:** [@santafered1](https://forum.livingwithfacialpain.org/u/santafered1)\ **Replies:** 17\ **Last updated:** [May 8, 2018, 4:00am UTC](https://forum.livingwithfacialpain.org/t/whats-up-with-this-site/12584 "2018-05-08T04:00:52Z")
I really don't like this new site. I can't figure it out. I may have to find a new one. I can't find anything. --- ## [Reducing meds or not?](https://forum.livingwithfacialpain.org/t/reducing-meds-or-not/14583)
**Author:** [@Ellis](https://forum.livingwithfacialpain.org/u/Ellis)\ **Replies:** 7\ **Last updated:** [May 4, 2018, 5:41pm UTC](https://forum.livingwithfacialpain.org/t/reducing-meds-or-not/14583 "2018-05-04T17:41:22Z")
Hello everyone, glad you are here. My neuro says I can cut back on my medication when the TN is a few months in remission. I thought otherwise and cutting back can be a trigger. What do you think? I wish you no pain, … --- ## [Finally a comparative study: MVD](https://forum.livingwithfacialpain.org/t/finally-a-comparative-study-mvd/14521)
**Author:** [@ModSupport](https://forum.livingwithfacialpain.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [May 1, 2018, 6:14pm UTC](https://forum.livingwithfacialpain.org/t/finally-a-comparative-study-mvd/14521 "2018-05-01T18:14:14Z")
Microvascular Decompression Versus Stereotactic Radiosurgery for Trigeminal Neuralgia: A Decision Analysis This came out about a year ago, and I haven’t seen it referenced here so thought I’d bring it up. Stereotactic R… --- ## [May be dental afterall](https://forum.livingwithfacialpain.org/t/may-be-dental-afterall/14715)
**Author:** [@Java](https://forum.livingwithfacialpain.org/u/Java)\ **Replies:** 4\ **Last updated:** [April 21, 2018, 2:15am UTC](https://forum.livingwithfacialpain.org/t/may-be-dental-afterall/14715 "2018-04-21T02:15:29Z")
Hi all. I thought I’d start a new topic, I have posted in the new members and have had so many helpful and caring responses. I have been experiencing jaw pain and a strange feeling in one of my back molars since this a… --- ## [TN Diagnosis but I Disagree](https://forum.livingwithfacialpain.org/t/tn-diagnosis-but-i-disagree/13743)
**Author:** [@Meldaver](https://forum.livingwithfacialpain.org/u/Meldaver)\ **Replies:** 56\ **Last updated:** [March 30, 2018, 4:59am UTC](https://forum.livingwithfacialpain.org/t/tn-diagnosis-but-i-disagree/13743 "2018-03-30T04:59:50Z")
Long story short. I finally got an MRA yesterday. A very clear compression was found on the right side. Two MRIs over the past year - one regular with contrast and one with contrast and a thin slice to the trigeminal … [Previous page](https://forum.livingwithfacialpain.org/c/general/tn/23.md) [Next page](https://forum.livingwithfacialpain.org/c/general/tn/23.md?page=2)