# Idiopathic Facial Pain Discussion **URL:** https://forum.livingwithfacialpain.org/c/general/idiopathic-facial-pain/24.md [Latest](https://forum.livingwithfacialpain.org/latest.md) · [Categories](https://forum.livingwithfacialpain.org/categories.md) · [Tags](https://forum.livingwithfacialpain.org/tags.md) --- ## [About the Idiopathic Facial Pain Discussion category](https://forum.livingwithfacialpain.org/t/about-the-idiopathic-facial-pain-category/12560)
**Author:** [@ModSupport](https://forum.livingwithfacialpain.org/u/ModSupport)\ **Replies:** 1\ **Last updated:** [September 24, 2021, 2:58pm UTC](https://forum.livingwithfacialpain.org/t/about-the-idiopathic-facial-pain-category/12560 "2021-09-24T14:58:55Z")
--- ## [Pain Flare up after being on Cymbalta for three years](https://forum.livingwithfacialpain.org/t/pain-flare-up-after-being-on-cymbalta-for-three-years/18551)
**Author:** [@Ann313](https://forum.livingwithfacialpain.org/u/Ann313)\ **Replies:** 4\ **Last updated:** [June 1, 2024, 2:58pm UTC](https://forum.livingwithfacialpain.org/t/pain-flare-up-after-being-on-cymbalta-for-three-years/18551 "2024-06-01T14:58:37Z")
I was diagnosed with infraorbital neuroglia three years ago by a very capable and compassionate neurologist. I went on 60 mg of generic cymbalta and have been pain free with some very minor hints of soreness in the top … --- ## [Pain at supratrochlear nerve area on forehead](https://forum.livingwithfacialpain.org/t/pain-at-supratrochlear-nerve-area-on-forehead/15274)
**Author:** [@Shirl-J](https://forum.livingwithfacialpain.org/u/Shirl-J)\ **Replies:** 3\ **Last updated:** [June 9, 2021, 9:29pm UTC](https://forum.livingwithfacialpain.org/t/pain-at-supratrochlear-nerve-area-on-forehead/15274 "2021-06-09T21:29:18Z")
Hi all, I have nerve pain on my forehead at the supratrochlear nerve area. Constantly between 5 to 8 out of 10. I am alergic to opioids and meds like gababentin do not help, just as any heavy pain killers. I am batte… --- ## [New here... not sure about diagnosis or treatment](https://forum.livingwithfacialpain.org/t/new-here-not-sure-about-diagnosis-or-treatment/17654)
**Author:** [@RecipeForDisaster](https://forum.livingwithfacialpain.org/u/RecipeForDisaster)\ **Replies:** 4\ **Last updated:** [February 11, 2021, 10:39pm UTC](https://forum.livingwithfacialpain.org/t/new-here-not-sure-about-diagnosis-or-treatment/17654 "2021-02-11T22:39:09Z")
I already had a neurologist in a big city for unrelated issues. He is hoping this is shingles without a rash, so I’ve been on Valtrex almost a week. My PCP prescribed carbamazepine and says this isn’t dental - she wonder… --- ## [Does anyone else have Interstitial Cystitis as well?](https://forum.livingwithfacialpain.org/t/does-anyone-else-have-interstitial-cystitis-as-well/17630)
**Author:** [@Shanna13](https://forum.livingwithfacialpain.org/u/Shanna13)\ **Replies:** 0\ **Last updated:** [January 23, 2021, 5:07pm UTC](https://forum.livingwithfacialpain.org/t/does-anyone-else-have-interstitial-cystitis-as-well/17630 "2021-01-23T17:07:36Z")
As the title says, I am in an Interstital Cystitis flair up as well, never had both going on simultaneously and looking for someone to chat with. --- ## ["Elavil"](https://forum.livingwithfacialpain.org/t/elavil/16082)
**Author:** [@squirrelygirl](https://forum.livingwithfacialpain.org/u/squirrelygirl)\ **Replies:** 5\ **Last updated:** [November 11, 2019, 4:34pm UTC](https://forum.livingwithfacialpain.org/t/elavil/16082 "2019-11-11T16:34:38Z")
Read this story about this lady who took “Elavil” for her TN and she’s been 6years free of Pain. What I want to know is, has of is anyone on Elavil and if so what was it or has been for you? Tell me all because I plan to… --- ## [Triliptal](https://forum.livingwithfacialpain.org/t/triliptal/15234)
**Author:** [@squirrelygirl](https://forum.livingwithfacialpain.org/u/squirrelygirl)\ **Replies:** 23\ **Last updated:** [September 24, 2019, 8:23pm UTC](https://forum.livingwithfacialpain.org/t/triliptal/15234 "2019-09-24T20:23:26Z")
Used to be atypical trigeminal neuralgia and was on Tegretol then was diagnosed with “Idiopathic trigeminal neuralgia with concomitant continuous pain” and now this morning I start triliptal. I have hope for this medica… --- ## [PTSD? (Post Traumatic Stress Disorder)](https://forum.livingwithfacialpain.org/t/ptsd-post-traumatic-stress-disorder/15512)
**Author:** [@Dave2505](https://forum.livingwithfacialpain.org/u/Dave2505)\ **Replies:** 8\ **Last updated:** [July 25, 2019, 6:06pm UTC](https://forum.livingwithfacialpain.org/t/ptsd-post-traumatic-stress-disorder/15512 "2019-07-25T18:06:59Z")
Hi all, I am new to this site and to the diagnosis of having TN, which isn’t confirmed yet as I am waiting to see a Neurologist. I have been suffering for over 15 years with headaches and toothache but my symptoms were… --- ## [Pain Medication and TN](https://forum.livingwithfacialpain.org/t/pain-medication-and-tn/14035)
**Author:** [@stfrazier](https://forum.livingwithfacialpain.org/u/stfrazier)\ **Replies:** 5\ **Last updated:** [July 24, 2019, 12:30pm UTC](https://forum.livingwithfacialpain.org/t/pain-medication-and-tn/14035 "2019-07-24T12:30:17Z")
What is the best pain medication you all have found to help? My doctor gives me Norco 10 and has written for me to take two as needed prn. But I just really feel like they do anything. --- ## [Trying a new Neurologist](https://forum.livingwithfacialpain.org/t/trying-a-new-neurologist/15154)
**Author:** [@glosmenagerie](https://forum.livingwithfacialpain.org/u/glosmenagerie)\ **Replies:** 19\ **Last updated:** [November 23, 2018, 8:21pm UTC](https://forum.livingwithfacialpain.org/t/trying-a-new-neurologist/15154 "2018-11-23T20:21:16Z")
I know this is crazy to give a go at a new neurologist but I’ve never been keen on my current one. Living in northwest New Mexico is sometimes like living in the middle of nowhere. I hate having ATN because it’s like liv… --- ## [Should one tell one's workers?](https://forum.livingwithfacialpain.org/t/should-one-tell-ones-workers/14960)
**Author:** [@European\_sufferer](https://forum.livingwithfacialpain.org/u/European_sufferer)\ **Replies:** 20\ **Last updated:** [August 6, 2018, 2:58pm UTC](https://forum.livingwithfacialpain.org/t/should-one-tell-ones-workers/14960 "2018-08-06T14:58:26Z")
I have spent the last hour or so trying to find an answer to this. The only threads I have found were covering the opposite situation. So I guess it’s ok to start a new topic. My situation is that I am a research group … --- ## [Persistent Idiopathic Facial Pain (PIFP) vs Type 2TN - always different?](https://forum.livingwithfacialpain.org/t/persistent-idiopathic-facial-pain-pifp-vs-type-2tn-always-different/14902)
**Author:** [@European\_sufferer](https://forum.livingwithfacialpain.org/u/European_sufferer)\ **Replies:** 8\ **Last updated:** [August 3, 2018, 2:47am UTC](https://forum.livingwithfacialpain.org/t/persistent-idiopathic-facial-pain-pifp-vs-type-2tn-always-different/14902 "2018-08-03T02:47:45Z")
Hello all. I am brandnew here, but not new to the pain. I have been having this pain for many years - but by a process of elimination and by finally finding specialized pain doctors I now know that I have face pain (ins… --- ## [Sativex as painkiller](https://forum.livingwithfacialpain.org/t/sativex-as-painkiller/14673)
**Author:** [@omieke](https://forum.livingwithfacialpain.org/u/omieke)\ **Replies:** 7\ **Last updated:** [April 9, 2018, 2:24pm UTC](https://forum.livingwithfacialpain.org/t/sativex-as-painkiller/14673 "2018-04-09T14:24:55Z")
could Sativex ( or medical marihuana) help with Facial pain . I have TN caused by MS . I’m at 800 mg of Carbamazepine and still I’m in pain from morning till evening . Help, help… I hope to hear if there is help to be… --- ## [100% Cured and Pain Free from ATN](https://forum.livingwithfacialpain.org/t/100-cured-and-pain-free-from-atn/8944)
**Author:** [@swayam](https://forum.livingwithfacialpain.org/u/swayam)\ **Replies:** 9\ **Last updated:** [April 5, 2018, 3:53pm UTC](https://forum.livingwithfacialpain.org/t/100-cured-and-pain-free-from-atn/8944 "2018-04-05T15:53:45Z")
ATN are many type. Face pain, Neck pain, Eye pain, Headache. Dental Phantom Pain. Please add a note if you get cured completely and pain free. Before you leave the board and enjoy your new life please leave a note so tha… --- ## [Maybe something new](https://forum.livingwithfacialpain.org/t/maybe-something-new/14581)
**Author:** [@MJ12](https://forum.livingwithfacialpain.org/u/MJ12)\ **Replies:** 6\ **Last updated:** [March 11, 2018, 4:41pm UTC](https://forum.livingwithfacialpain.org/t/maybe-something-new/14581 "2018-03-11T16:41:59Z")
Has anyone recently had any Botox injections for facial nerve pain? I read some old posts but I was wondering if anyone has tried it more recently and if so, was it effective? --- ## [My journey so far - Atypical ondontalgia](https://forum.livingwithfacialpain.org/t/my-journey-so-far-atypical-ondontalgia/14520)
**Author:** [@justine](https://forum.livingwithfacialpain.org/u/justine)\ **Replies:** 9\ **Last updated:** [February 20, 2018, 5:39pm UTC](https://forum.livingwithfacialpain.org/t/my-journey-so-far-atypical-ondontalgia/14520 "2018-02-20T17:39:19Z")
Hello, not sure if there is anyone else from Scotland on here. After having tooth issues in Nov ( a filling needed replaced) i was still in pain and got root canal, still pain so then on 21st dec got tooth extracted. Dev… --- ## [Topical info-actually quite good-Azurelle and Ziggy might like](https://forum.livingwithfacialpain.org/t/topical-info-actually-quite-good-azurelle-and-ziggy-might-like/14472)
**Author:** [@anon37611625](https://forum.livingwithfacialpain.org/u/anon37611625)\ **Replies:** 8\ **Last updated:** [February 3, 2018, 1:14pm UTC](https://forum.livingwithfacialpain.org/t/topical-info-actually-quite-good-azurelle-and-ziggy-might-like/14472 "2018-02-03T13:14:31Z")
http://www.wrha.mb.ca/osd/files/NeuropathicPainScottGroen.pdf --- ## [Sleep tracker device, which one?](https://forum.livingwithfacialpain.org/t/sleep-tracker-device-which-one/14296)
**Author:** [@wm\_phillips](https://forum.livingwithfacialpain.org/u/wm_phillips)\ **Replies:** 1\ **Last updated:** [December 21, 2017, 5:52am UTC](https://forum.livingwithfacialpain.org/t/sleep-tracker-device-which-one/14296 "2017-12-21T05:52:59Z")
Sleep is my best medicine, by far. Some years ago I completed a comprehensive sleep study at a local hospital setting. Results were inconclusive. Diagnosed with moderate rem sleep apnea, but not enough to conclude sleep … --- ## [For those who have had surgery](https://forum.livingwithfacialpain.org/t/for-those-who-have-had-surgery/14139)
**Author:** [@azurelle](https://forum.livingwithfacialpain.org/u/azurelle)\ **Replies:** 1\ **Last updated:** [October 30, 2017, 6:22pm UTC](https://forum.livingwithfacialpain.org/t/for-those-who-have-had-surgery/14139 "2017-10-30T18:22:48Z")
I was wondering if anyone has followed the med guidelines for phantom pain syndrome after pain has returned? I haven’t done surgery myself, it just crossed my mind than these surgically processes could fall in line with… --- ## [Anyone with Supraorbital Neuralgia here?](https://forum.livingwithfacialpain.org/t/anyone-with-supraorbital-neuralgia-here/14045)
**Author:** [@cherylebr](https://forum.livingwithfacialpain.org/u/cherylebr)\ **Replies:** 5\ **Last updated:** [October 16, 2017, 2:07am UTC](https://forum.livingwithfacialpain.org/t/anyone-with-supraorbital-neuralgia-here/14045 "2017-10-16T02:07:30Z")
Hi Everyone. I have been diagnosed with supraorbital neuralgia due to a sinus surgery I had in 2008. I have been suffering with a daily headache that is above my eye and runs down the side of my nose. Just wondering i… --- ## [Sunglass solutions for Those with Facial Triggers](https://forum.livingwithfacialpain.org/t/sunglass-solutions-for-those-with-facial-triggers/14005)
**Author:** [@Earlady](https://forum.livingwithfacialpain.org/u/Earlady)\ **Replies:** 2\ **Last updated:** [September 28, 2017, 7:07pm UTC](https://forum.livingwithfacialpain.org/t/sunglass-solutions-for-those-with-facial-triggers/14005 "2017-09-28T19:07:04Z")
My AFP was first noticed and aggravated by the use of contacts and glasses, both of which I need for reading. After years of searching for help, I just had IOL- IntraOcular Lens replacement. (similar to cataract surgery… --- ## [Complex Regional Pain Syndrome Type 1 & 2(Reflex Sympathetic Dystrophy) Cause of Facial Pain](https://forum.livingwithfacialpain.org/t/complex-regional-pain-syndrome-type-1-2-reflex-sympathetic-dystrophy-cause-of-facial-pain/13257)
**Author:** [@ModSupport](https://forum.livingwithfacialpain.org/u/ModSupport)\ **Replies:** 5\ **Last updated:** [March 2, 2017, 5:46pm UTC](https://forum.livingwithfacialpain.org/t/complex-regional-pain-syndrome-type-1-2-reflex-sympathetic-dystrophy-cause-of-facial-pain/13257 "2017-03-02T17:46:55Z")
Another poster (thanks @Meldaver) brought up the possibilty of RSD. Reflex Sympathetic Dystrophy is now classified as Complex Regional Pain Syndrome Type 1 or Complex Regional Pain Syndrome Type 2. It is a very plausib… --- ## [TMD or Atypical TN or both](https://forum.livingwithfacialpain.org/t/tmd-or-atypical-tn-or-both/12996)
**Author:** [@anon37611625](https://forum.livingwithfacialpain.org/u/anon37611625)\ **Replies:** 0\ **Last updated:** [December 3, 2016, 1:13pm UTC](https://forum.livingwithfacialpain.org/t/tmd-or-atypical-tn-or-both/12996 "2016-12-03T13:13:12Z")
Hi About a year ago a wiggly lower front tooth started to get painful.As I have a dread of dentists I decided to have it removed and get dentures.The tooth beside the tooth that was removed started to hurt about a month … --- ## [Balloon compression op](https://forum.livingwithfacialpain.org/t/balloon-compression-op/12890)
**Author:** [@Marfran](https://forum.livingwithfacialpain.org/u/Marfran)\ **Replies:** 0\ **Last updated:** [October 16, 2016, 11:31am UTC](https://forum.livingwithfacialpain.org/t/balloon-compression-op/12890 "2016-10-16T11:31:17Z")
What is the effects of balloon compression on different people ? What to expect afterwards , how long does it take to kick in etc --- ## [Occipital Pain](https://forum.livingwithfacialpain.org/t/occipital-pain/12590)
**Author:** [@Jane7](https://forum.livingwithfacialpain.org/u/Jane7)\ **Replies:** 7\ **Last updated:** [September 29, 2016, 6:46am UTC](https://forum.livingwithfacialpain.org/t/occipital-pain/12590 "2016-09-29T06:46:02Z")
Hi I'm still learning how to use this line so hope I'm right ,my pain is occipital head pain I think it's going to explode ,just had Mri scan waiting for results neurologist has put me on Tegretol but it makes me like a … --- ## [Tooth Trauma HELP!](https://forum.livingwithfacialpain.org/t/tooth-trauma-help/8885)
**Author:** [@Hinton](https://forum.livingwithfacialpain.org/u/Hinton)\ **Replies:** 16\ **Last updated:** [July 19, 2016, 11:24pm UTC](https://forum.livingwithfacialpain.org/t/tooth-trauma-help/8885 "2016-07-19T23:24:29Z")
Hi, Can anyone offer any advice? 10 weeks ago I bit down on a hard cracker using my front teeth, my front left upper #1 hurt as the cracker was quite tough. The tooth began to ache quite severely, it felt tender and was… --- ## [Teary eye, runny nose and sneezing](https://forum.livingwithfacialpain.org/t/teary-eye-runny-nose-and-sneezing/8631)
**Author:** [@justjane37](https://forum.livingwithfacialpain.org/u/justjane37)\ **Replies:** 10\ **Last updated:** [June 7, 2016, 9:46pm UTC](https://forum.livingwithfacialpain.org/t/teary-eye-runny-nose-and-sneezing/8631 "2016-06-07T21:46:04Z")
I have a teary eye and runny nose only on one side and only during an attack. Lately I have had these sudden, extreme bursts of pain at the back on my tongue that last anywhere from 30 seconds to about a minute. They are… --- ## [Geniculate Neuralgia](https://forum.livingwithfacialpain.org/t/geniculate-neuralgia/656)
**Author:** [@Lumbee](https://forum.livingwithfacialpain.org/u/Lumbee)\ **Replies:** 1\ **Last updated:** [May 9, 2016, 2:48pm UTC](https://forum.livingwithfacialpain.org/t/geniculate-neuralgia/656 "2016-05-09T14:48:30Z")
Does anyone on this blog suffer from GN? I haven't seen anyone on here that suffers from GN which effects the deep inner ears with stabbing pains. I've suffered for 8 years with GN,most recently had my 2 brain surgery bu… --- ## [Vagoglossopharyngeal neuralgia](https://forum.livingwithfacialpain.org/t/vagoglossopharyngeal-neuralgia/11206)
**Author:** [@Recycled\_Karma](https://forum.livingwithfacialpain.org/u/Recycled_Karma)\ **Replies:** 1\ **Last updated:** [March 25, 2016, 4:15pm UTC](https://forum.livingwithfacialpain.org/t/vagoglossopharyngeal-neuralgia/11206 "2016-03-25T16:15:30Z")
Hi I'm newly diagnosed vgpn with tn overlap symptoms I was just wandering if anyone else out there has the same issue and what the symptoms are. I have these crazy palpitations that come with the sharp pains in my left e…