# GPN Discussion **URL:** https://forum.livingwithfacialpain.org/c/general/gpn/22.md [Latest](https://forum.livingwithfacialpain.org/latest.md) · [Categories](https://forum.livingwithfacialpain.org/categories.md) · [Tags](https://forum.livingwithfacialpain.org/tags.md) --- ## [About the GPN Discussion category](https://forum.livingwithfacialpain.org/t/about-the-gpn-category/12558)
**Author:** [@ModSupport](https://forum.livingwithfacialpain.org/u/ModSupport)\ **Replies:** 0
--- ## [Eight Years Eleven Months](https://forum.livingwithfacialpain.org/t/eight-years-eleven-months/13193)
**Author:** [@mwi](https://forum.livingwithfacialpain.org/u/mwi)\ **Replies:** 3\ **Last updated:** [January 13, 2022, 12:06am UTC](https://forum.livingwithfacialpain.org/t/eight-years-eleven-months/13193 "2022-01-13T00:06:06Z")
...after falling ill with GPN, I have finally had MVD which was an instant success. I realise it's early days and I'm still recovering from the operation (four weeks on) but I have to ask myself, WHY didn't I have this d… --- ## [Covid vaccine](https://forum.livingwithfacialpain.org/t/covid-vaccine/17616)
**Author:** [@Lou1](https://forum.livingwithfacialpain.org/u/Lou1)\ **Replies:** 9\ **Last updated:** [February 11, 2021, 11:26pm UTC](https://forum.livingwithfacialpain.org/t/covid-vaccine/17616 "2021-02-11T23:26:39Z")
Getting the Covid vaccine tomorrow. Worried. Anybody else gotten it yet? --- ## [Is this Really a diagnosis?](https://forum.livingwithfacialpain.org/t/is-this-really-a-diagnosis/15994)
**Author:** [@Marilina](https://forum.livingwithfacialpain.org/u/Marilina)\ **Replies:** 16\ **Last updated:** [September 29, 2019, 5:00am UTC](https://forum.livingwithfacialpain.org/t/is-this-really-a-diagnosis/15994 "2019-09-29T05:00:29Z")
Hi Everyone, My name is Maddy. I am sorry this is long and maybe we I am a 35 y/o female. I was officially diagnosed when I was 24, but had symptoms way before that, and a prior migraine diagnosis at 15 y/o. I suppose … --- ## [Anyone have experience with these drug combinations?](https://forum.livingwithfacialpain.org/t/anyone-have-experience-with-these-drug-combinations/15525)
**Author:** [@GomeraM](https://forum.livingwithfacialpain.org/u/GomeraM)\ **Replies:** 1\ **Last updated:** [July 10, 2019, 4:28am UTC](https://forum.livingwithfacialpain.org/t/anyone-have-experience-with-these-drug-combinations/15525 "2019-07-10T04:28:55Z")
I’m currently in a part of the world with little experience with GPN. Unfortunately a month ago, I suffered a return of this terrible evil pain. On advice of my doctor, and after a few titrations, I’m now taking lacosam… --- ## [Klonipin use](https://forum.livingwithfacialpain.org/t/klonipin-use/13714)
**Author:** [@Ajb](https://forum.livingwithfacialpain.org/u/Ajb)\ **Replies:** 11\ **Last updated:** [March 24, 2019, 2:27am UTC](https://forum.livingwithfacialpain.org/t/klonipin-use/13714 "2019-03-24T02:27:46Z")
How many of you use Klonipin for ATN, What dosage do you use, how many times a day. Thx --- ## [GPN & oral lichen planus](https://forum.livingwithfacialpain.org/t/gpn-oral-lichen-planus/15194)
**Author:** [@Herb](https://forum.livingwithfacialpain.org/u/Herb)\ **Replies:** 0\ **Last updated:** [December 26, 2018, 1:52pm UTC](https://forum.livingwithfacialpain.org/t/gpn-oral-lichen-planus/15194 "2018-12-26T13:52:28Z")
Has anyone with GPN also been diagnosed with oral lichen planus or oral lichenoid reaction? --- ## [Vitamin D Study](https://forum.livingwithfacialpain.org/t/vitamin-d-study/15168)
**Author:** [@azurelle](https://forum.livingwithfacialpain.org/u/azurelle)\ **Replies:** 2\ **Last updated:** [December 10, 2018, 8:42pm UTC](https://forum.livingwithfacialpain.org/t/vitamin-d-study/15168 "2018-12-10T20:42:39Z")
Although the study was for diabetic nerve pain, I would think much of this info would relate to other nerve pain as well: https://www.medscape.com/viewarticle/901641?src=WNL\_infoc\_181201\_MSCPEDIT\_TEMP2&uac=289271PY&impI… --- ## [Recommendation for Neurosurgeon Australia](https://forum.livingwithfacialpain.org/t/recommendation-for-neurosurgeon-australia/14646)
**Author:** [@rara](https://forum.livingwithfacialpain.org/u/rara)\ **Replies:** 6\ **Last updated:** [November 13, 2018, 10:37am UTC](https://forum.livingwithfacialpain.org/t/recommendation-for-neurosurgeon-australia/14646 "2018-11-13T10:37:28Z")
Needing recommendations for a neurosurgeon in Australia, preferably in Eastern states…I live in Tasmania. I have been diagnosed with GPN 12 months ago after suffering excruciating pain off and on for past 5 years…last bo… --- ## [GPN Update 2018](https://forum.livingwithfacialpain.org/t/gpn-update-2018/15101)
**Author:** [@Herb](https://forum.livingwithfacialpain.org/u/Herb)\ **Replies:** 7\ **Last updated:** [November 7, 2018, 7:39am UTC](https://forum.livingwithfacialpain.org/t/gpn-update-2018/15101 "2018-11-07T07:39:35Z")
I have caused 9 ENT’S & 1 neurosurgeon to throw up their hands & say they don’t know what is wrong with me. 4 neuro’s agreed I had classic GPN symptoms with a few symptoms that didn’t fit. I had gamma knife & nerve resec… --- ## [Oral Lichen Planus aka Lichenoid Reaction](https://forum.livingwithfacialpain.org/t/oral-lichen-planus-aka-lichenoid-reaction/15135)
**Author:** [@Herb](https://forum.livingwithfacialpain.org/u/Herb)\ **Replies:** 2\ **Last updated:** [November 5, 2018, 1:14pm UTC](https://forum.livingwithfacialpain.org/t/oral-lichen-planus-aka-lichenoid-reaction/15135 "2018-11-05T13:14:11Z")
I am chasing an old ailment that might be causing my GPN type pain. Cardiovascular BP drugs, cholesterol lowering drugs, mint, & cinnamon. All these aggravate the lichen planus. It may have traveled to my throat? It… --- ## [MVD in Tassie so far successful](https://forum.livingwithfacialpain.org/t/mvd-in-tassie-so-far-successful/15128)
**Author:** [@rara](https://forum.livingwithfacialpain.org/u/rara)\ **Replies:** 0\ **Last updated:** [October 28, 2018, 10:16pm UTC](https://forum.livingwithfacialpain.org/t/mvd-in-tassie-so-far-successful/15128 "2018-10-28T22:16:32Z")
Continuing the discussion from Recommendation for Neurosurgeon Australia: --- ## [Tn & on](https://forum.livingwithfacialpain.org/t/tn-on/15122)
**Author:** [@Tracy5](https://forum.livingwithfacialpain.org/u/Tracy5)\ **Replies:** 2\ **Last updated:** [October 26, 2018, 12:10am UTC](https://forum.livingwithfacialpain.org/t/tn-on/15122 "2018-10-26T00:10:47Z")
Does anyone suffer from TN & ON.I am postop 2 years MVD and was originally dx with ON then TN .I was told by surgeons that ON was a product of TN. Has anyone had that told to them. Both are back with with a vengeance an… --- ## [GPN Triggers/Symptoms/Causes/Relief](https://forum.livingwithfacialpain.org/t/gpn-triggers-symptoms-causes-relief/13016)
**Author:** [@Cairenn](https://forum.livingwithfacialpain.org/u/Cairenn)\ **Replies:** 11\ **Last updated:** [June 17, 2018, 10:32am UTC](https://forum.livingwithfacialpain.org/t/gpn-triggers-symptoms-causes-relief/13016 "2018-06-17T10:32:34Z")
GPN Triggers/Symptoms/Causes/Relief Note I wrote this to be able to help others identify with GPN. I have suffered this off and on for 13/14yrs. This is what I have learned... TRIGGERS After 13+yrs (diagnosed with GP… --- ## [Ten months post-MVD surgery for GPN](https://forum.livingwithfacialpain.org/t/ten-months-post-mvd-surgery-for-gpn/13050)
**Author:** [@Chetty](https://forum.livingwithfacialpain.org/u/Chetty)\ **Replies:** 6\ **Last updated:** [March 24, 2018, 1:36am UTC](https://forum.livingwithfacialpain.org/t/ten-months-post-mvd-surgery-for-gpn/13050 "2018-03-24T01:36:07Z")
I've been away from this board for a bit, enjoying having my life back since MVD surgery for Glossopharyngeal Neuralgia, here in London Ontario Canada. I am a 57 year-old male employed as a fire Captain. To summarize, … --- ## [Share Experience Strength or Hope in Relation to Topic Only](https://forum.livingwithfacialpain.org/t/share-experience-strength-or-hope-in-relation-to-topic-only/13502)
**Author:** [@warrior\_woman](https://forum.livingwithfacialpain.org/u/warrior_woman)\ **Replies:** 2\ **Last updated:** [May 24, 2017, 8:57pm UTC](https://forum.livingwithfacialpain.org/t/share-experience-strength-or-hope-in-relation-to-topic-only/13502 "2017-05-24T20:57:04Z")
Hi Fellow Travelers, I cant believe its one year since posting. Time flies, however, pain does not !!!! Any new tips?? I used to call myself Warrior Woman on the old site. Now perhaps Weaker Warrior Woman may be more app… --- ## [Misdiagnosis](https://forum.livingwithfacialpain.org/t/misdiagnosis/13402)
**Author:** [@mountain\_vicar](https://forum.livingwithfacialpain.org/u/mountain_vicar)\ **Replies:** 16\ **Last updated:** [May 1, 2017, 8:58pm UTC](https://forum.livingwithfacialpain.org/t/misdiagnosis/13402 "2017-05-01T20:58:15Z")
After almost of year of continued medication and gamma knife I was ton learn that the three doctors had made a terrible mistake. I should have never had the gamma radiation and it may well be my death warrant. In January… --- ## [TN petition](https://forum.livingwithfacialpain.org/t/tn-petition/12627)
**Author:** [@JustKeepSwimming](https://forum.livingwithfacialpain.org/u/JustKeepSwimming)\ **Replies:** 2\ **Last updated:** [April 14, 2017, 2:52am UTC](https://forum.livingwithfacialpain.org/t/tn-petition/12627 "2017-04-14T02:52:35Z")
Hey guys, I stumbled upon this site and think it's worth checking out. And if you feel comfortable doing it, signing the petition might help us all out too :slight\_smile: http://www.tnnme.com/ http://www.ipetitions.… --- ## [Neuropathy, TN, past osteomyelitis, could it be NICO](https://forum.livingwithfacialpain.org/t/neuropathy-tn-past-osteomyelitis-could-it-be-nico/13383)
**Author:** [@Liligirl](https://forum.livingwithfacialpain.org/u/Liligirl)\ **Replies:** 1\ **Last updated:** [April 8, 2017, 11:20pm UTC](https://forum.livingwithfacialpain.org/t/neuropathy-tn-past-osteomyelitis-could-it-be-nico/13383 "2017-04-08T23:20:15Z")
Help, I am hitting walls. A quick background on me. I had osteomyelitis of the mandible but never had debridement done because of complicated surgeries before the osteomyelitis was detected. Then the pain came. Type … --- ## [Burning Pain along jaw to ear - could this be a type pf neuralgia?](https://forum.livingwithfacialpain.org/t/burning-pain-along-jaw-to-ear-could-this-be-a-type-pf-neuralgia/13039)
**Author:** [@Woman\_with\_the\_elect](https://forum.livingwithfacialpain.org/u/Woman_with_the_elect)\ **Replies:** 4\ **Last updated:** [January 7, 2017, 7:20pm UTC](https://forum.livingwithfacialpain.org/t/burning-pain-along-jaw-to-ear-could-this-be-a-type-pf-neuralgia/13039 "2017-01-07T19:20:33Z")
Hi, I have TN1, currently in remission. I have it in my teeth/jaw on the right side. Recently I developed twinges of pain in my upper left teeth that I thought might be a cracked tooth. I went to the dentist and he spott… --- ## [Pain after MVD for GPN](https://forum.livingwithfacialpain.org/t/pain-after-mvd-for-gpn/12734)
**Author:** [@April](https://forum.livingwithfacialpain.org/u/April)\ **Replies:** 3\ **Last updated:** [December 29, 2016, 12:37am UTC](https://forum.livingwithfacialpain.org/t/pain-after-mvd-for-gpn/12734 "2016-12-29T00:37:40Z")
I had an MVD June 13. I am off all meds except for 500mg Tylenol twice a day. I've tried going without it and can't. I did go down to 2 instead of 3 a day. I skipped it last night and had a bad night. Also woke up in pai… --- ## [GPN question](https://forum.livingwithfacialpain.org/t/gpn-question/13006)
**Author:** [@Cairenn](https://forum.livingwithfacialpain.org/u/Cairenn)\ **Replies:** 8\ **Last updated:** [December 16, 2016, 3:16pm UTC](https://forum.livingwithfacialpain.org/t/gpn-question/13006 "2016-12-16T15:16:43Z")
Have any of you with GPN had any type of neck injury in your previous years (ex: whiplash)? Even if it was many years ago. --- ## [The symptoms of glossopharyngeal neuralgia](https://forum.livingwithfacialpain.org/t/the-symptoms-of-glossopharyngeal-neuralgia/12589)
**Author:** [@Prudence](https://forum.livingwithfacialpain.org/u/Prudence)\ **Replies:** 7\ **Last updated:** [December 10, 2016, 4:00pm UTC](https://forum.livingwithfacialpain.org/t/the-symptoms-of-glossopharyngeal-neuralgia/12589 "2016-12-10T16:00:24Z")
Hi, is there anyone else who has symptoms of gpn? --- ## [Stiffness/tight sensation in lip and chin](https://forum.livingwithfacialpain.org/t/stiffness-tight-sensation-in-lip-and-chin/13007)
**Author:** [@Jurie](https://forum.livingwithfacialpain.org/u/Jurie)\ **Replies:** 0\ **Last updated:** [December 7, 2016, 5:02am UTC](https://forum.livingwithfacialpain.org/t/stiffness-tight-sensation-in-lip-and-chin/13007 "2016-12-07T05:02:07Z")
What medication can be used for stiffness or tightness(paresthesia) in lip and chin due to nerve being repaired after it eas damaged? Thank you. --- ## [Light up teal!](https://forum.livingwithfacialpain.org/t/light-up-teal/12873)
**Author:** [@JustKeepSwimming](https://forum.livingwithfacialpain.org/u/JustKeepSwimming)\ **Replies:** 0\ **Last updated:** [October 8, 2016, 1:25am UTC](https://forum.livingwithfacialpain.org/t/light-up-teal/12873 "2016-10-08T01:25:40Z")
Happy world TN day to you all friends!!! in the midst of this dreadful disease I consider it a blessing to have you all here, with us all going through this together :slight\_smile: You've gotten me through some of the w… --- ## [3 1/2 mo post mvd issues](https://forum.livingwithfacialpain.org/t/3-1-2-mo-post-mvd-issues/12869)
**Author:** [@April](https://forum.livingwithfacialpain.org/u/April)\ **Replies:** 0\ **Last updated:** [October 5, 2016, 2:23pm UTC](https://forum.livingwithfacialpain.org/t/3-1-2-mo-post-mvd-issues/12869 "2016-10-05T14:23:45Z")
Surgery was June 13 and for past 2 wks my ear is clogged again like shortly after surgery, incision area throbs and I can feel my pulse booming in that area, horrible taste in my mouth is worse and a few muted shocks fro… --- ## [Cervical Pillows / Collars - Do They Work?](https://forum.livingwithfacialpain.org/t/cervical-pillows-collars-do-they-work/12799)
**Author:** [@Nameless](https://forum.livingwithfacialpain.org/u/Nameless)\ **Replies:** 1\ **Last updated:** [September 12, 2016, 5:03pm UTC](https://forum.livingwithfacialpain.org/t/cervical-pillows-collars-do-they-work/12799 "2016-09-12T17:03:45Z")
So, my doctor showed me something called "Real-Ease", a support thing for your head & neck that's supposed to take pressure off your head & neck area. I only used it for a minute or so, but it seems like it could be some… --- ## [I need info on occipital nerve pain](https://forum.livingwithfacialpain.org/t/i-need-info-on-occipital-nerve-pain/12753)
**Author:** [@helpsis](https://forum.livingwithfacialpain.org/u/helpsis)\ **Replies:** 0\ **Last updated:** [September 1, 2016, 11:17pm UTC](https://forum.livingwithfacialpain.org/t/i-need-info-on-occipital-nerve-pain/12753 "2016-09-01T23:17:22Z")
Hi all, I need to find info on occipital nerve pain. This is for my sis who was told it is not TN, it is occipital nerve pain. She just went today to her first appointment with neurologist. Blood work first then treat… --- ## [DX and MVD approaching](https://forum.livingwithfacialpain.org/t/dx-and-mvd-approaching/12652)
**Author:** [@MOF1](https://forum.livingwithfacialpain.org/u/MOF1)\ **Replies:** 3\ **Last updated:** [July 28, 2016, 10:04am UTC](https://forum.livingwithfacialpain.org/t/dx-and-mvd-approaching/12652 "2016-07-28T10:04:31Z")
I haven't been here since it was the old site, and have had a lot going on, ear pain and otherwise in life. The neurologist I had been seeing kept insisting I had atypical facial pain. The dx just didn't sit right with… --- ## [The end of root canals? Revolutionary 'stem cell fillings'](https://forum.livingwithfacialpain.org/t/the-end-of-root-canals-revolutionary-stem-cell-fillings/12625)
**Author:** [@Hinton](https://forum.livingwithfacialpain.org/u/Hinton)\ **Replies:** 0\ **Last updated:** [July 8, 2016, 9:04pm UTC](https://forum.livingwithfacialpain.org/t/the-end-of-root-canals-revolutionary-stem-cell-fillings/12625 "2016-07-08T21:04:28Z")
I came across this artical today, Researchers from the University of Nottingham and the Wyss Institute at Harvard University in the UK have developed something that will end all root canals, can only be a good thing rega… [Next page](https://forum.livingwithfacialpain.org/c/general/gpn/22.md?page=1)