# Archive **URL:** https://forum.livingwithfacialpain.org/c/archive/38.md?page=2 [Latest](https://forum.livingwithfacialpain.org/latest.md) · [Categories](https://forum.livingwithfacialpain.org/categories.md) · [Tags](https://forum.livingwithfacialpain.org/tags.md) **Page:** 3 --- ## [Good Moring. Symtoms](https://forum.livingwithfacialpain.org/t/good-moring-symtoms/11074)
**Author:** [@David6](https://forum.livingwithfacialpain.org/u/David6)\ **Replies:** 1\ **Last updated:** [April 1, 2015, 2:43pm UTC](https://forum.livingwithfacialpain.org/t/good-moring-symtoms/11074 "2015-04-01T14:43:15Z")
All indications is that i have TN but to be confirmed shortly. I am trying to gather as much information as i can about this condition. All the reports i have read so far only discribe the pain being in the back of the … --- ## [Driving with TN1](https://forum.livingwithfacialpain.org/t/driving-with-tn1/11073)
**Author:** [@John787](https://forum.livingwithfacialpain.org/u/John787)\ **Replies:** 1\ **Last updated:** [April 1, 2015, 9:22am UTC](https://forum.livingwithfacialpain.org/t/driving-with-tn1/11073 "2015-04-01T09:22:07Z")
I have been diagnosed with TN1 for just two weeks. I am taking Carbamazepine 200mg, half a pill twice daily. The pills seem to be working as I have not had an attack since starting to take the pills. I am worried about … --- ## [Pain again](https://forum.livingwithfacialpain.org/t/pain-again/11064)
**Author:** [@Pierre](https://forum.livingwithfacialpain.org/u/Pierre)\ **Replies:** 6\ **Last updated:** [March 31, 2015, 1:17pm UTC](https://forum.livingwithfacialpain.org/t/pain-again/11064 "2015-03-31T13:17:20Z")
Hi all. Just want to whine. 9 months post mvd and all is fine (ish) with TN pain in jaw. Pain in right eye, eyelid and right temple all kinda new since mvd. Comes and goes but it's very "there" today. Afraid of TN in tha… --- ## [Some new symptoms for me and a question that I am wondering about](https://forum.livingwithfacialpain.org/t/some-new-symptoms-for-me-and-a-question-that-i-am-wondering-about/11048)
**Author:** [@Cathy\_in\_MD](https://forum.livingwithfacialpain.org/u/Cathy_in_MD)\ **Replies:** 4\ **Last updated:** [March 26, 2015, 3:09pm UTC](https://forum.livingwithfacialpain.org/t/some-new-symptoms-for-me-and-a-question-that-i-am-wondering-about/11048 "2015-03-26T15:09:36Z")
Hello all, I am new here and have felt very welcomed, thank you all. I have TN2, which I have always believed was caused by having my wisdom teeth removed. Apparently I also had some cyst's that the surgeon had to remo… --- ## [Local Fundraiser for Ben's Friends](https://forum.livingwithfacialpain.org/t/local-fundraiser-for-bens-friends/651)
**Author:** [@Scott\_Orn](https://forum.livingwithfacialpain.org/u/Scott_Orn)\ **Replies:** 1\ **Last updated:** [March 23, 2015, 6:08am UTC](https://forum.livingwithfacialpain.org/t/local-fundraiser-for-bens-friends/651 "2015-03-23T06:08:01Z")
I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends." It was a big s… --- ## [Local Fundraiser for Ben's Friends](https://forum.livingwithfacialpain.org/t/local-fundraiser-for-bens-friends/11072)
**Author:** [@Scott\_Orn](https://forum.livingwithfacialpain.org/u/Scott_Orn)\ **Replies:** 0\ **Last updated:** [March 22, 2015, 3:34pm UTC](https://forum.livingwithfacialpain.org/t/local-fundraiser-for-bens-friends/11072 "2015-03-22T15:34:46Z")
I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends." It was a big s… --- ## [A letter to a friend: Can You Understand My Pain Now?](https://forum.livingwithfacialpain.org/t/a-letter-to-a-friend-can-you-understand-my-pain-now/11066)
**Author:** [@StrongKaren](https://forum.livingwithfacialpain.org/u/StrongKaren)\ **Replies:** 4\ **Last updated:** [March 16, 2015, 10:21pm UTC](https://forum.livingwithfacialpain.org/t/a-letter-to-a-friend-can-you-understand-my-pain-now/11066 "2015-03-16T22:21:48Z")
You are best friend and it's important to me that you know how I feel physically but most of all mentally and emotionally. When you call I hate bringing up my illness but the last few weeks my pain is constant, almost un… --- ## [No more trigeminal!](https://forum.livingwithfacialpain.org/t/no-more-trigeminal/11063)
**Author:** [@redlegs](https://forum.livingwithfacialpain.org/u/redlegs)\ **Replies:** 5\ **Last updated:** [March 16, 2015, 4:38am UTC](https://forum.livingwithfacialpain.org/t/no-more-trigeminal/11063 "2015-03-16T04:38:26Z")
I have not had one bout of trigeminal Neuralgia since I had my acupuncture treatments! As I wrote before, my granddaughter studied under Chinese professors in Ashville, N.C. It has been wonderful not having to worry wh… --- ## [2nd Microvascular decompression](https://forum.livingwithfacialpain.org/t/2nd-microvascular-decompression/11049)
**Author:** [@Crysta\_W](https://forum.livingwithfacialpain.org/u/Crysta_W)\ **Replies:** 2\ **Last updated:** [March 12, 2015, 6:51pm UTC](https://forum.livingwithfacialpain.org/t/2nd-microvascular-decompression/11049 "2015-03-12T18:51:39Z")
Hello All- I had my first mvd 4 years ago and have been for the most part pain free. I had minor pain here and there until 3 months when it started back at full force. Most recently I was in the er this week and they s… --- ## [Workout pain](https://forum.livingwithfacialpain.org/t/workout-pain/11061)
**Author:** [@bluemoonbuff](https://forum.livingwithfacialpain.org/u/bluemoonbuff)\ **Replies:** 4\ **Last updated:** [March 11, 2015, 5:45pm UTC](https://forum.livingwithfacialpain.org/t/workout-pain/11061 "2015-03-11T17:45:19Z")
Hi, I'm new to dealing with TN and it's pain. Wondering if it's normal for pains to get worse from working out? Last two weight workouts the pain has started shortly after starting and it seems like if I do the ellipti… --- ## [Severely Depressed](https://forum.livingwithfacialpain.org/t/severely-depressed/10284)
**Author:** [@SufferingJen](https://forum.livingwithfacialpain.org/u/SufferingJen)\ **Replies:** 8\ **Last updated:** [March 11, 2015, 12:25am UTC](https://forum.livingwithfacialpain.org/t/severely-depressed/10284 "2015-03-11T00:25:35Z")
I saw a new dr today who obv. doesnt know a thing..or am i loosing my mind? he told me that tn can go into remission forever, and going for surgery would be the last thing to do and wouldn't recommend it bc its invasive.… --- ## [If I Watch Netflix One More Day](https://forum.livingwithfacialpain.org/t/if-i-watch-netflix-one-more-day/11069)
**Author:** [@StrongKaren](https://forum.livingwithfacialpain.org/u/StrongKaren)\ **Replies:** 0\ **Last updated:** [March 3, 2015, 1:22am UTC](https://forum.livingwithfacialpain.org/t/if-i-watch-netflix-one-more-day/11069 "2015-03-03T01:22:56Z")
Trigeminal Neuralgia and cold weather go together like oil and water. It just doesn’t mix and when you try to stir the two together more the bigger the mess it makes. So, I’ve been absolutely going stir crazy in my hou… --- ## [The Silence of Friends and Letters Unanswered](https://forum.livingwithfacialpain.org/t/the-silence-of-friends-and-letters-unanswered/11067)
**Author:** [@StrongKaren](https://forum.livingwithfacialpain.org/u/StrongKaren)\ **Replies:** 2\ **Last updated:** [March 1, 2015, 9:00pm UTC](https://forum.livingwithfacialpain.org/t/the-silence-of-friends-and-letters-unanswered/11067 "2015-03-01T21:00:41Z")
“The biggest disease today is not leprosy or tuberculosis, but rather the feeling of being unwanted, uncared for, and deserted by everybody.” Mother Teresa. If you have read many quotes from Mother Teresa, she wasn’t … --- ## [Children with TN](https://forum.livingwithfacialpain.org/t/children-with-tn/11068)
**Author:** [@Kristen6](https://forum.livingwithfacialpain.org/u/Kristen6)\ **Replies:** 0\ **Last updated:** [February 26, 2015, 3:34pm UTC](https://forum.livingwithfacialpain.org/t/children-with-tn/11068 "2015-02-26T15:34:03Z")
Hi Everyone This is a post for you parents of a TN child and/or if there is anyone on this site who is young or who has had TN since you were young. My daughter is nearly 11 and has had 24/7 face and head pain for 3.5 … --- ## [Had my MVD](https://forum.livingwithfacialpain.org/t/had-my-mvd/11065)
**Author:** [@Howie](https://forum.livingwithfacialpain.org/u/Howie)\ **Replies:** 1\ **Last updated:** [February 25, 2015, 12:14am UTC](https://forum.livingwithfacialpain.org/t/had-my-mvd/11065 "2015-02-25T00:14:52Z")
Well it has now been nearly 3 weeks since I had an MVD. How do I feel, just great. I currently have NO TN pain what so ever. I was in hospital for 4 days, awoke after the operation feeling just marvellous, a bit sore whe… --- ## [Mess not working](https://forum.livingwithfacialpain.org/t/mess-not-working/11060)
**Author:** [@paullover](https://forum.livingwithfacialpain.org/u/paullover)\ **Replies:** 1\ **Last updated:** [February 17, 2015, 11:09pm UTC](https://forum.livingwithfacialpain.org/t/mess-not-working/11060 "2015-02-17T23:09:10Z")
Meds not working 300 mg carbatrol 3times day neurontin 600 3 times a day so they took me off of carbatrol put me on oxcarbazepine 300 3times day maybe not giving enough time but pain is increasing Thinking of having need… --- ## [The Last Year and a Half: Part Three](https://forum.livingwithfacialpain.org/t/the-last-year-and-a-half-part-three/11055)
**Author:** [@LadyFace](https://forum.livingwithfacialpain.org/u/LadyFace)\ **Replies:** 2\ **Last updated:** [February 17, 2015, 10:28pm UTC](https://forum.livingwithfacialpain.org/t/the-last-year-and-a-half-part-three/11055 "2015-02-17T22:28:05Z")
On April 10, 2014, I had my first visit with the Complex Pain Clinic in Calgary. Within 10 minutes, I heard the words that would forever change my life: Trigeminal Neuralgia. I had never heard of this before and from wha… --- ## [TN Friends](https://forum.livingwithfacialpain.org/t/tn-friends/11058)
**Author:** [@Nancy\_E\_H](https://forum.livingwithfacialpain.org/u/Nancy_E_H)\ **Replies:** 1\ **Last updated:** [February 17, 2015, 7:35pm UTC](https://forum.livingwithfacialpain.org/t/tn-friends/11058 "2015-02-17T19:35:19Z")
Hello to all of my TN friends - I received a call Monday from Duke University Hospital that they were ready to make an appointment for me. They received my referral from my Neurologist on Monday & called me the same day.… --- ## [Someone help me](https://forum.livingwithfacialpain.org/t/someone-help-me/11062)
**Author:** [@Priya](https://forum.livingwithfacialpain.org/u/Priya)\ **Replies:** 1\ **Last updated:** [February 16, 2015, 8:45pm UTC](https://forum.livingwithfacialpain.org/t/someone-help-me/11062 "2015-02-16T20:45:41Z")
I woke up one morning after a night out with my friends to find right sided tightness and numbness in my cheek. I don't know why this has occured but it's been like this for 5 months. My cheek constantly looks puffy beca… --- ## [New med changing pain cycle](https://forum.livingwithfacialpain.org/t/new-med-changing-pain-cycle/11057)
**Author:** [@Lou1](https://forum.livingwithfacialpain.org/u/Lou1)\ **Replies:** 2\ **Last updated:** [February 15, 2015, 5:50am UTC](https://forum.livingwithfacialpain.org/t/new-med-changing-pain-cycle/11057 "2015-02-15T05:50:01Z")
The new med is changing things for me. The burning is changing to a more tolerable sensation. I am working with a massage therapist who I have let manipulate my face, believe me with some trepidation, but it softened the… --- ## [TN Friends](https://forum.livingwithfacialpain.org/t/tn-friends/11059)
**Author:** [@Nancy\_E\_H](https://forum.livingwithfacialpain.org/u/Nancy_E_H)\ **Replies:** 2\ **Last updated:** [February 12, 2015, 6:34pm UTC](https://forum.livingwithfacialpain.org/t/tn-friends/11059 "2015-02-12T18:34:20Z")
Hello to all of my TN friends - I received a call Monday from Duke University Hospital that they were ready to make an appointment for me. They received my referral from my Neurologist on Monday & called me the same day.… --- ## [Rhizotomy post Op Pain](https://forum.livingwithfacialpain.org/t/rhizotomy-post-op-pain/11056)
**Author:** [@Bikershaz](https://forum.livingwithfacialpain.org/u/Bikershaz)\ **Replies:** 1\ **Last updated:** [February 7, 2015, 1:12pm UTC](https://forum.livingwithfacialpain.org/t/rhizotomy-post-op-pain/11056 "2015-02-07T13:12:58Z")
I had my left side done on 15 Dec and right side last week since op last and have been in so much pain and want to die. Both sides of my mouth are hurting, all my teeth are hurting, developed earache and headache Any s… --- ## [Rfl](https://forum.livingwithfacialpain.org/t/rfl/11054)
**Author:** [@gigi3](https://forum.livingwithfacialpain.org/u/gigi3)\ **Replies:** 1\ **Last updated:** [February 6, 2015, 3:47pm UTC](https://forum.livingwithfacialpain.org/t/rfl/11054 "2015-02-06T15:47:21Z")
two weeks ago today I had the Trig.nerve burned off my Acoustic neuroma. WHAT A HUGE MISTAKE , AT ALMOST 66, HAD DONE AT VANDEBILT AND NOW i AM IN WORSE PAIN, NUMB AND SEEMS SO HELP FROM THERE SINCE i LIVE IN mEMPHIS … --- ## [Back in the TN pain driven tunnel](https://forum.livingwithfacialpain.org/t/back-in-the-tn-pain-driven-tunnel/11028)
**Author:** [@saraid](https://forum.livingwithfacialpain.org/u/saraid)\ **Replies:** 8\ **Last updated:** [February 6, 2015, 3:35pm UTC](https://forum.livingwithfacialpain.org/t/back-in-the-tn-pain-driven-tunnel/11028 "2015-02-06T15:35:25Z")
It has become increasingly difficult for me, as I am watching my life narrowing due to my worsening TN. I have run out of options where medicine, and surgery are concerned, and I … --- ## [4 Months Post MVD](https://forum.livingwithfacialpain.org/t/4-months-post-mvd/11051)
**Author:** [@Chippy1](https://forum.livingwithfacialpain.org/u/Chippy1)\ **Replies:** 2\ **Last updated:** [February 3, 2015, 1:15am UTC](https://forum.livingwithfacialpain.org/t/4-months-post-mvd/11051 "2015-02-03T01:15:38Z")
Well things are going much better than before MVD. I had been experiencing some numbness/tightness on upper right temple. I visited my neurologist this week who advised I will be finding different sensations as my head i… --- ## [Need a neuro in memphis ! please help!](https://forum.livingwithfacialpain.org/t/need-a-neuro-in-memphis-please-help/11036)
**Author:** [@gigi3](https://forum.livingwithfacialpain.org/u/gigi3)\ **Replies:** 1\ **Last updated:** [February 2, 2015, 7:29pm UTC](https://forum.livingwithfacialpain.org/t/need-a-neuro-in-memphis-please-help/11036 "2015-02-02T19:29:01Z")
DO NOT NEED A SURGEON - JUST A DR . TO DEAL WITH TN PAIN FROM NERVES PRESSING ON MY ACOUSTIC NEUROMA. --- ## [Rfl](https://forum.livingwithfacialpain.org/t/rfl/11053)
**Author:** [@gigi3](https://forum.livingwithfacialpain.org/u/gigi3)\ **Replies:** 0\ **Last updated:** [February 2, 2015, 5:25pm UTC](https://forum.livingwithfacialpain.org/t/rfl/11053 "2015-02-02T17:25:39Z")
two weeks ago today I had the Trig.nerve burned off my Acoustic neuroma. WHAT A HUGE MISTAKE , AT ALMOST 66, HAD DONE AT VANDEBILT AND NOW i AM IN WORSE PAIN, NUMB AND SEEMS SO HELP FROM THERE SINCE i LIVE IN mEMPHIS … --- ## [3 Months Post MVD](https://forum.livingwithfacialpain.org/t/3-months-post-mvd/11039)
**Author:** [@Chippy1](https://forum.livingwithfacialpain.org/u/Chippy1)\ **Replies:** 10\ **Last updated:** [February 1, 2015, 8:38pm UTC](https://forum.livingwithfacialpain.org/t/3-months-post-mvd/11039 "2015-02-01T20:38:03Z")
Christmas Eve will be my 3 months since MVD. I thank everyone who supported me and I cannot still believe that I am feeling so good. Each day is better. I am beginning to have fun, smile more, even sing the songs of the … --- ## [1 MVD, 2 Gamma Knife done / pain bakc](https://forum.livingwithfacialpain.org/t/1-mvd-2-gamma-knife-done-pain-bakc/11052)
**Author:** [@mkoop2surgeriesdone](https://forum.livingwithfacialpain.org/u/mkoop2surgeriesdone)\ **Replies:** 1\ **Last updated:** [February 1, 2015, 7:01pm UTC](https://forum.livingwithfacialpain.org/t/1-mvd-2-gamma-knife-done-pain-bakc/11052 "2015-02-01T19:01:20Z")
Had an MVD done in Jan 2002 by Dr Tew in Cincinnati. That was after years of doctors misdiagnosing me, then finding out what I had all by myself by typing in symptons on the internet in 2000. In Dec 2001 pain got so bad … --- ## [Can anyone answer question please](https://forum.livingwithfacialpain.org/t/can-anyone-answer-question-please/11031)
**Author:** [@lesley](https://forum.livingwithfacialpain.org/u/lesley)\ **Replies:** 6\ **Last updated:** [February 1, 2015, 4:37am UTC](https://forum.livingwithfacialpain.org/t/can-anyone-answer-question-please/11031 "2015-02-01T04:37:56Z")
I was wondering if with TN can a specific tooth be felt that sends jolts through jaw. Burning in bottom jaw line. I already had root canal in tooth due to thinking it was bad tooth when it was TN. But with meds had no pa… [Previous page](https://forum.livingwithfacialpain.org/c/archive/38.md?page=1) [Next page](https://forum.livingwithfacialpain.org/c/archive/38.md?page=3)